Content area

Abstract

Autism spectrum disorder (ASD) is being identified in an ever-increasing number of countries, including many that are low or middle income (LMIC). Research conducted in these countries requires awareness of unique ethical issues. Drawing on the experience of two organizations that have been involved in conducting and collaborating in ASD research in India, we describe specific considerations in conducting epidemiological, genetic and treatment studies as well as general principles from the field of multinational clinical research as they apply to the conduct of ASD research. We argue that greater attention to ethical concerns will result in quality studies conducted in LMICs that are also of greatest relevance for families and children with ASD.[PUBLICATION ABSTRACT]

Details

Title
Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries
Author
Daley, Tamara C; Singhal, Nidhi; Krishnamurthy, Vibha
Pages
2002-14
Publication year
2013
Publication date
Sep 2013
Publisher
Springer Nature B.V.
ISSN
01623257
e-ISSN
15733432
Source type
Scholarly Journal
Language of publication
English
ProQuest document ID
1423212215
Copyright
Springer Science+Business Media New York 2013