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© 2023 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.

Abstract

The Health Level 7 (HL7) organization introduced the Information Sensitivity Policy Value Set with 45 sensitive data categories to facilitate the implementation of granular electronic consent technology. The goal is to allow patients to have control over the sharing of their sensitive medical records. This study represents the first attempt to explore physicians’ viewpoints on these categories. Twelve physicians participated in a survey, leading to revisions in 21 HL7 categories. They later classified 600 clinical data items through a second survey using the updated categories. Participants’ perspectives were documented, and data analysis included descriptive measures and heat maps. In the first survey, six participants suggested adding 19 new categories (e.g., personality disorder), and modifying 25 category definitions. Two new categories and sixteen revised category definitions were incorporated to support more patient-friendly content and inclusive language. Fifteen new category recommendations were addressed through a revision of category definitions (e.g., personality disorder described as a behavioral health condition). In the second survey, data categorizations led to recommendations for more categories from ten participants. Future revisions of the HL7 categories should incorporate physicians’ viewpoints, validate the categories using patient data or/and include patients’ perspectives, and develop patient-centric category specifications.

Details

Title
Physicians’ Perspectives on HL7 Information Policy Sensitive Value Set: A Validation Study through Health Concept Categorization
Author
Maheswari Eluru 1   VIAFID ORCID Logo  ; Mendoza, Daniel Hector 1 ; Wong, Audrey 1 ; Jafari, Mohammad 2 ; Todd, Michael 3   VIAFID ORCID Logo  ; Bayless, Patricia 4 ; Chern, Darwyn 5 ; Eldredge, Christina 6 ; Fonseca, Rodrigo 7 ; Franco-Fuquen, Pedro 8 ; Juan Esteban Garcia-Robledo 9   VIAFID ORCID Logo  ; Benjamin Grant Gifford 10 ; Rhea, Hans 7 ; Eider Felipe Moreno-Cortes 7   VIAFID ORCID Logo  ; Perumbeti, Ajay 11 ; Vargas-Cely, Fabio Samir 7   VIAFID ORCID Logo  ; Zhao, Lin 8 ; Grando, Maria Adela 1 

 College of Health Solutions, Arizona State University, Phoenix, AZ 85054, USA[email protected] (D.H.M.); 
 College of Health Solutions, Arizona State University, Phoenix, AZ 85054, USA[email protected] (D.H.M.); ; Health Level Seven International, Ann Arbor, MI 48104, USA 
 Edson College of Nursing and Health Innovation, Arizona State University, Phoenix, AZ 85004, USA; [email protected] 
 District Medical Group, Phoenix, AZ 85016, USA 
 Copa Health, Phoenix, AZ 85009, USA; [email protected] 
 Morsani College of Medicine, University of South Florida, Tampa, FL 33602, USA 
 Mayo Clinic, Phoenix, AZ 85054, USA; [email protected] (R.F.); [email protected] (F.S.V.-C.) 
 HonorHealth, Phoenix, AZ 85020, USA 
 College of Medicine, University of Arizona, Phoenix, AZ 85004, USA 
10  Banner Health Systems, Phoenix, AZ 85006, USA 
11  College of Medicine, University of Arizona, Phoenix, AZ 85004, USA; Banner Health Systems, Phoenix, AZ 85006, USA 
First page
2845
Publication year
2023
Publication date
2023
Publisher
MDPI AG
e-ISSN
22279032
Source type
Scholarly Journal
Language of publication
English
ProQuest document ID
2888137856
Copyright
© 2023 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.