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Abstract
People living with inflammatory bowel disease (IBD) and their caregivers are faced with indirect and out-of-pocket costs that they would not otherwise experience. These costs impact one’s ability to contribute to the economy to their fullest potential. The indirect costs of IBD in Canada are estimated to be at least $1.51 billion in 2023 and include costs associated with lost productivity resulting from a combination of missed work (absenteeism), decreased workplace productivity (presenteeism), unemployment, premature mortality, and caregiving costs. Unemployment is the largest contributor to indirect costs ($1.14 billion), followed by costs of absenteeism and presenteeism ($285 million). Caregiving costs for children with IBD are estimated to be nearly $58 million. Canadians with IBD also pay $536 million every year for care that is not covered by universal or supplemental private health insurance; this includes allied healthcare (e.g., care provided by psychologists), medication, and other supportive therapy. Combined, the indirect and out-of-pocket costs of IBD in Canada are estimated at more than $2 billion CAD in 2023. This is substantially higher than the estimate of $1.29 billion in Crohn’s and Colitis Canada’s 2018 Impact of IBD report with differences attributable to a combination of rising prevalence, inflation, and the addition of presenteeism and caregiving costs to the total indirect costs.
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Details
1 SickKids Inflammatory Bowel Disease Centre, Division of Gastroenterology, Hepatology, and Nutrition, The Hospital for Sick Children , Toronto, Ontario , Canada
2 Departments of Medicine and Community Health Sciences, University of Calgary , Calgary, Alberta , Canada
3 Department of Medicine, University of Ottawa , Ottawa, Ontario , Canada
4 Department of Internal Medicine, Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba , Winnipeg, Manitoba , Canada
5 Division of Gastroenterology and Hepatology, McGill University Health Centre IBD Centre, McGill University , Montréal, Quebec , Canada
6 Departments of Medicine, Clinical Health, and Epidemiology, Dalhousie University , Halifax, Nova Scotia , Canada
7 Crohn’s and Colitis Canada , Toronto, Ontario , Canada
8 Department of Community Health and Epidemiology, University of Saskatchewan , Saskatoon, Saskatchewan , Canada
9 College of Nursing, University of Saskatchewan , Saskatoon, Saskatchewan , Canada
10 Division of Gastroenterology and Hepatology, University Health Network, University of Toronto , Toronto, Ontario , Canada
11 Department of Gastroenterology, University of Toronto , Toronto, Ontario , Canada
12 Department of Medicine, University of Toronto , Toronto, Ontario , Canada
13 Department of Internal Medicine, University of Toronto , Toronto, Ontario , Canada
14 Department of Medicine, Memorial University of Newfoundland , St John’s Newfoundland , Canada
15 Division of Gastroenterology and Hepatology, Mount Sinai Hospital, University of Toronto , Toronto, Ontario , Canada