Introduction
The number of forcibly displaced people globally has reached unprecedented levels, now estimated at 117.3 million people [1]. Historically, Canada is a refugee resettlement leader, with Toronto and Calgary currently being its Eastern and Western resettlement hubs [2]. Newly arrived refugees face high social vulnerability that negatively impacts their health and long-term well-being including, discrimination, health system navigation difficulties, language barriers, poverty, and employment challenges [3,4]. Refugees also face greater access barriers to healthcare and education, have less family support, and fewer financial resources than host populations, that combined, negatively impact their post-resettlement health and wellbeing [3–5].
To address these health disparities, many jurisdictions have developed specialized refugee health clinics in Canada to serve refugees’ and migrants’ unique health and resettlement needs [2]. Despite these specialized refugee clinics, gaps remain in providing refugee-centered healthcare services. Community-based participatory research (CBPR) techniques, such as Delphi and Nominal Group Technique (NGT), have been used to identify community-driven healthcare priorities and encourage democratic participation of socially marginalized groups [6,7].
Despite these advances, refugee and asylum seeker voices are often unrepresented in traditional health research [8] leading to major knowledge gaps about their perceived healthcare and research priorities during pre, early-post, and late-post resettlement periods. Engaging directly with resettled refugees can address these gaps and inform health system improvements; however, whether refugee can utilize these techniques to derive their own health priorities, and a research agenda to address them, remains untested. For example, the WHO recently released an important Global Research Agenda on Health and Migration9, which details a globally derived consensus on the fields’ research priorities, but notably omitted refugees [9].
To address these critical gaps in inclusive health and research agenda-setting among forcibly displaced populations, we employed CBPR techniques to explore consensus-derived health and research priorities among a diverse committee of resettled refugees, asylum claimants and evacuees. We aimed to investigate the feasibility and effectiveness of employing these techniques with multilingual and multicultural displaced communities to identify health and research priorities across different phases of resettlement.
Materials & methods
Study design and setting
We conducted a qualitative study that utilized pragmatist epistemology and NGT among refugees, asylum seekers and evacuees in Calgary, Canada from January 2023 to May 2024. We recruited a Patient Advisory Committee (PAC) of current and former refugees, asylum claimants and Ukrainian evacuees (herein referred to as ‘refugees’) from a specialized multidisciplinary refugee clinic and various partner community organizations [10]. We aimed to investigate healthcare delivery gaps and priorities among refugees, and research priorities aimed to address them. We conducted evening focus groups in person at the refugee clinic, with online video meetings for participants unable to attend in-person. We assessed NGT process feasibility among PAC participants using participation rates, session retention, and successful completion of the priority-ranking process. We evaluated NGT process effectiveness depending on whether PAC participants generated actionable health and research priorities and whether participants validated these priorities during a final member checking step.
Inclusion, recruitment and sampling framework
We included adult refugees (18+ yrs) living in Canada who could share their healthcare system experiences and communicate with basic English proficiency. Clinic staff and non-study physicians informed and referred potential participants to the study team. Recruitment occurred from January 5th, 2023, until January 29th, 2024. Potential committee members were purposively recruited to include various global regions, religions, cultures, languages, gender identities and refugee categories (i.e., government-assisted, privately sponsored or refugee claimant). Community scholars (community leaders and research team members) also facilitated participant recruitment [11].
We later included Ukrainian evacuees despite not being classified as refugees by the Canadian government given they represented a large forcibly displaced population with similar needs, and experiences as other refugees [12]. We adapted our protocol to include evacuees from the Canada Ukraine Authorization for Emergency Travel (CUAET) program in March 2022 [13] as Russia’s invasion of Ukraine occurred before the study began in February 2022. We first hosted one focus group with Ukrainian evacuees to better understand their health and research priorities. Observing parallels in responses with the existing refugee PAC, we subsequently merged the groups. Our full protocol is available as supplementary material for further reference.
Data collection
At each focus group, participants were given time to ask questions or request translations to provide informed consent. Food and refreshments and $25 gift card per person were provided for each focus group attended. Participants completed a sociodemographic survey form using standardized questions adapted from the Canadian Community Health Survey [14]. We collected self-reported age, sex at birth, gender, country of origin, ethnicity, languages spoken, education level, refugee category, family composition, income, and relevant migration histories. Participants completed paper or online surveys via Qualtrics (Provo, Utah, United States). All participants in this study provided informed written consent prior to participation. All data was securely stored at the University of Calgary.
Study time periods
Participants identified health and research priorities across three time periods: Pre-migration to early arrival (-3–3 months), post-migration (3 months–2 years), and long-term resettlement (>2 years). We defined pre-migration to early arrival as 3 months pre-departure to 3 months post-arrival to align with United States resettlement policy that expects economic independence after 90 days of arrival [15]. We defined the post-migration period as 3 months to 2-years post-arrival as most specialized Canadian refugee clinics provide care for newly arrived refugees for 1–2 years before transitioning to the general health system [2]. We defined long-term resettlement as >2 years post arrival.
NGT process and focus groups
We conducted focus groups utilizing NGT [6,7,16], a qualitative consensus-building methodology, which captures all perspectives inclusively and democratically within a group setting to generate participant priorities and build consensus [6].
The NGT format included:
1. 1) Generating Ideas: Facilitated idea generation by each participant silently.
2. 2) Recording Ideas: Participants shared ideas one at a time, without interruptions or discussion to allow total participation. A facilitator recorded all responses on a whiteboard verbatim, creating numbered lists for research and health priorities. During this step, discussion or questions were not permitted to ensure free expression by all.
3. 3) Discussing Ideas: Once all ideas were recorded, participants openly discussed each for clarity, to ask questions, or to agree or disagree.
4. 4) Voting on Ideas: Participants anonymously selected and ranked their top 5 ideas from most important to least important on cue cards and submitted them to the study team, who aggregated vote points. Ideas with the most vote points represented the group consensus.
Three facilitators led PAC meetings: a primary facilitator for meeting structure, one to record field notes; and a third to record ideas and priorities on physical and virtual whiteboards. Study facilitators were study team members and study co-authors. We did not record initial focus groups to ensure confidentiality and maintain participants’ comfort, opting instead to take detailed field notes, including verbatim participant quotes. We recorded the final group discussion given its large size to ensure all points were captured. Occasionally, similar ideas were noted separately and subsequently voted upon. To address this redundancy, two authors independently reviewed the resultant priorities to identify and merge similar concepts and their corresponding point allocations. Any remaining conflicts were resolved through consultation with a third senior author and consensus reached through group discussion.
Priority ranking and analysis
We used dense ranking to analyse and present lists of participants-derived priorities to emphasize categorization over a rigid hierarchy. After participants ranked their priorities, they were scored from 5 points for the first priority to 1 point for the fifth. The maximum achievable score for each priority was calculated by multiplying the total number of participants by 5, representing the highest possible score if every participant selected a specific priority as their top option [6]. This score represented the denominator to which the total votes were compared against and ranked. Sociodemographic data was analyzed using Excel Software (Redmond, Washington, United States). We calculated means and standard deviations for normally distributed data, medians with interquartile ranges for non-normally distributed data, and frequencies for categorical data.
Overarching priorities
Once priorities were identified across the three resettlement periods, participants convened for a final focus group to determine the overarching priorities in both health and research domains across all three time periods. Each participant received five stickers to represent their health priorities and five for their research priorities and instructed to distribute stickers freely across the previously identified priorities list across three different resettlement periods. They could allocate multiple stickers to a single priority if desired. Finally, we calculating the total cumulative sticker counts to identify the top five overarching health and research priorities across resettlement time periods.
Member-checking
After all focus groups, we conducted a member-checking step utilizing an online survey to verify results with PAC participants [17]. In the member-checking process researchers share findings with participants to verify their accuracy and ensure credibility. In keeping with participatory research principles, it also invites participants to actively engage in the analytic process, thus enhancing the study finding’s accuracy, validity and acceptability [17]. We sent participants consolidated tables of the identified priorities for feedback and confirmation, and asked participants to opine on the study’s key findings, and their implications for Canadian refugee healthcare. We incorporated this member-checking feedback into the results. Finally, participants were invited to review the study manuscript, suggest edits, and co-author if interested.
Quotes
The first author conducted a thematic analysis of quotes taken verbatim from either field notes or feedback obtained during the member checking step. The analysis was subsequently reviewed and finalized by two other co-authors.
This study was approved by the Calgary Conjoint Health Research Ethics Board (CHREB) (Ethics ID: REB21–0954_REN2). We utilized the Guidance for Reporting Involvement of Patients and the Public (GRIPP2) and Consolidated Criteria for Reporting Qualitative Research (COREQ) checklists to guide and summarize the study [18,19].
Results
We recruited 23 focus group participants among which 21 individuals completed sociodemographic surveys. Table 1 presents their characteristics. Overall, PAC participants were diverse, representing 8 distinct countries and different resettlement durations in Canada ranging from 9 months to 18 years of residence (Table 1). Participants’ households varied from 1 person to 8 people, and reported speaking 7 primary languages at home, however education level varied minimally, as all had completed some or full college or university education (Table 1). Notably, 29% of participants were naturalized citizens, and 24% of participants reporting mostly speaking English at home despite not having English as their first language. All temporary foreign workers were Ukrainian evacuees.
[Figure omitted. See PDF.]
Twelve participants completed the member-checking process, and all affirmed the results; only one participant requested clarification. Member-checking feedback was incorporated into the results (Figs 1, 2, 3, 4, and 5).
[Figure omitted. See PDF.]
[Figure omitted. See PDF.]
*QoL: Quality of life.
[Figure omitted. See PDF.]
[Figure omitted. See PDF.]
*IMGs: International Medical Graduates. **IFHP: Interim Federal Health Profram.
[Figure omitted. See PDF.]
Pre-migration/early arrival (0–3 months)
In the pre-migration/early arrival period, participants identified healthcare system navigation as the top priority and the greatest health need. Participants highlighted including the need to increase basic Canadian healthcare system information and understanding, eligibility and access to medications (especially for pre-existing medical conditions), and knowing if pre-conditions impart ineligibility for refugees to come to Canada. Similarly, health system navigation post-arrival secured a unanimous vote as the top research priority (55/55) with Canadian health system navigation pre-arrival as the second research priority (42/55) (Fig 1).
Post-arrival healthcare system navigation was also identified as a priority. Participants proposed potential solutions to address this gap, such as leveraging existing language classes to increase health system navigation post arrival, including connection to refugee-serving primary care clinics, vaccinations, insurance coverage, and the immigration medical exam, as well as where to start and the importance of each.
The Ukrainian focus group similarly identified healthcare navigation as the top priority (32/35, Fig 2) with their focus paralleling the main focus group. However, Ukrainian participants focused more on addressing the healthcare navigation barriers and increasing accessibility to available services. Full details on the verbatim and summarized research priorities voted on presented in Fig 1 are found in Appendix S2b and S2c Tables respectively.
Post-migration (3 months-2 years)
In this time period, participants unanimously voted mental health as both the top research priority (25/25), emphasizing further need for research on this topic, and health priority (17/20), highlighting its importance in the middle settlement period (Fig 3). Participants identified health system navigation as their fourth health priority, highlighting its importance across settlement time periods (Fig 3). Participants indicated that mainstream approaches for health orientation did not work sufficiently in refugee communities, emphasizing that health information and updates were usually acquired informally through social media groups and community leaders. Thus, they recommended that governments and health systems better utilize social media to disseminate reliable health information. Participants provided other potential solutions, such as texting refugees in their language instead of calling in English, and using WhatsApp instead of emails, as preferred methods for communication.
“Most of the information we get about Canadian healthcare we get from Facebook and Instagram”
Various participants emphasized that social media is the primary platform for transmitting health information within the refugee community and reinforced their recommendations for healthcare information to be disseminated to refugee communities through these channels.
Long-term resilient healthcare system (beyond 2 years)
As displayed in Fig 4, participants identified primary care physician shortages as a major Canadian healthcare system gap. They ranked International Medical Graduates’ (IMG) support as a top priority in both health and research, as a solution to addressing this gap and sustaining an adaptable and resilient healthcare system for refugees.
Overarching priorities across all three time periods
We present the top five overarching priorities across resettlement periods in Fig 5. The committee identified improving the family physician supply as the top health priority and investigating ways to improve pre-migration health system orientation and navigation as the top research priority. The second major theme the committee identified was difficulties navigating the healthcare system. As seen in Fig 5, healthcare navigation made the 3rd health priority (8/60) and the 1st research priority (11/60).
“Even me as a medical doctor, don’t know how to navigate healthcare system here in Canada…”
Navigating the healthcare system is crucial for care access and allowing refugees to address the issues and conditions they are facing.
“It’s so ridiculous that some families are going back to dangerous cities in Ukraine because they don’t know how to navigate healthcare system here”.
Therefore, improving healthcare system navigation, was identified as critical health and research priorities for refugees across all time periods.
Many participants discussed experiencing difficulties adjusting to life in Canada, resulting in reduced mental health. As such, mental health was the third priority for both the health and research (7/60, 5/60 respectively, Fig 5), emphasizing its importance across all resettlement time periods.
Finally, in our member checking process, participants’ key messages illustrated their call for increased representation and action to address identified gaps in healthcare for refugees.
“If some services are not clear or available, it does not mean that you should give up…if we express a need and interest, over time the system will begin to see this need and respond to it. Our opinion is important.”
“Canada accepts many refugees, many of them remain in the future to live in Canada. The more effectively the system takes care of health and availability of services at the beginning, the healthier residents we will have.”
Discussion
This study demonstrates that a group of resettled multi-national, multi-lingual forcibly displaced refugees, asylum claimants and evacuees can utilize rigorous participatory research methodology to develop their own healthcare and health research priorities. This proof-of-concept study illustrates that despite various sociocultural differences, the forcibly displaced can effectively use a structured, low-cost, democratic consensus process to co-produce research, prioritize their healthcare needs, and shape research agendas to address these needs across different resettlement time periods. The NGT process was feasible, as demonstrated by high participation rates, strong session retention, and successful completion of the priority-ranking exercise. It was also effective: refugee participants identified actionable health and research priorities, which were subsequently validated during the member-checking step, confirming their relevance and applicability. To our knowledge, this is the first study to detail how refugees can set their own health research priorities (without experts’ involvement and restricted area of focus) and co-produce research, particularly in the North American context. Notably, across early, mid and long-term resettlement periods, improving health system navigation (pre- and post-arrival) and addressing refugee mental health emerged as critical overarching priorities, highlighting key focus areas for future healthcare research and interventions. Also, nearly a third of our participants were naturalized Canadian citizens; thus, providing valuable insights into health and research priorities for long-term post-resettlement refugee health and wellbeing.
To our knowledge, this is the first study to openly deploy CBPR methods with refugees without a specific illness focus or external expert involvement, to identify and set their own health research priorities [20]. Our findings extend evidence from a recent study in New York that used Delphi methods to set health and research priorities among diverse community members [16]. While this study used similar methods [16], we are first to apply them with refugees, providing a comprehensive look into their self-prioritized health and research needs. The recently published WHO global research agenda [9], calls for affirmation of the right to participate in decision making, and the validity in considering lived experience as a form of expertise; but unfortunately, did not include refugees [9]. This proof-of-concept study provides important evidence that responds to the WHO’s call and others to engage people with lived experience and give them voice to solve - what they consider - their own health issues [9,21].
Previous studies have highlighted the mental health needs and healthcare navigation barriers faced by resettled refugees [22,23]; however, none specifically investigated whether refugees would benefit from host country’s healthcare system orientation in the pre-departure setting. Our study participants emphasized a critical need for pre-migration Canadian healthcare system orientation, including information about medical expenses, health insurance coverage, treatment continuity for existing health conditions, and whether health conditions can affect migration status negatively. These findings highlighted a critical gap and potentially simple solution that could easily be addressed with standardized, language and culturally adapted materials in the pre-departure period to provide needed health system orientation.
Our study identified other post-arrival healthcare navigation barriers such as, clinic and physician accessibility, confusing referral processes, lack of vaccination access, and difficulties with health insurance coverage. As in previous studies, these barriers seem especially evident for women refugees, who face increased healthcare barriers [24]. Our study participants, primarily women, identified many of the same barriers including managing lengthy wait times to access care, healthcare provider shortages, cultural and linguistic barriers, out of pocket costs, healthcare for children or elders, and difficult administrative processes [3,25]. Unlike previous studies, our participants developed nuanced healthcare and research priorities to address these barriers according to different resettlement periods.
Previous studies have shown that refugees’ health status significantly deteriorates globally with longer residence in resettlement countries linked to greater declines in physical health [4,26]. These post-arrival health disparities are potentially related to unrecognized difficulties with health system access and navigation unaddressed early post-arrival, exacerbating access barriers thus over time [5]. Addressing these gaps with simple solutions offered by our PAC participants could help reduce the observed health deterioration refugees experience.
Language barriers among refugees may exacerbate difficulties with access and orientation to healthcare services [25]. Interestingly, although our study participants were highly educated and proficient in English, they still encountered healthcare navigation difficulties. This suggests that refugee groups with lower language proficiency or educational attainment may face even greater challenges [25], underscoring the need for universal professional translation services embedded within healthcare systems [27].
Improving mental health supports was a highly ranked overarching health and research priority, despite prevalent stigmas regarding mental health among many refugee communities [22]. Our participants priorities aligned with mental health and psychosocial supports as critically important recognized needs for forcibly displaced communities worldwide [3,28]. Limited access to mental healthcare can exacerbate other health issues, diminishing overall health and quality of life [29], highlighting the need for improved methods and research focused on increasing the accessibility and reach of culturally tailored mental healthcare and psychosocial supports for forcibly displaced populations [23]. Consistent with our results, a study conducted in U.S among Somali refugees discussed mental health needs and healthcare system navigation difficulties as their main themes [23]. Similarly, their cohort also suggested the use of community health workers to reduce system navigation difficulties and foster culturally sensitive engagement with the refugee community [23]. Similar studies focusing on mental health equity have proven the efficacy of including refugee community advisory boards to achieve mental health equity and reduce health disparities by fostering cultural humility, authentic engagement and respect for community norms and preferences [20].
Our study has limitations. First, our committee’s limited educational diversity may constrain our findings’ transferability, as our participants relatively high educational attainment and English proficiency is not representative of all forcibly displaced populations. Also, using English as a common language to conduct focus groups likely excluded other potential participants. Despite this, our participants’ cultural, linguistic, geographical, and immigration categories were broadly diverse; thus, highlighting the applicability of the study’s methods across diverse populations. Second, voluntary participation and anonymity of votes and responses may have led to incomplete data collection. For example, cue cards containing votes were sometimes incomplete or illegible and remote participants experienced infrequent disconnections, resulting in missed responses. These technical limitations were mitigated with member checking steps and participant inclusion throughout the study. Future work could utilize text to speech software, AI-facilitated real-time translations, or other technological solutions to avoid missing responses. Third, the real-time ideas generation documented verbatim by a note taker may have incompletely captured participants’ ideas. However, open discussion at each focus group and member checking steps allowed participants to add nuance or clarify the priorities identified.
Conclusions
This proof-of-concept study demonstrates that involving resettled displaced populations in health and research priority setting is feasible and effective, enabling refugees to set their own priorities and propose innovative solutions to existing healthcare barriers. These findings can guide health system leaders and policymakers to develop low-cost strategies that create more effective and inclusive healthcare systems and services that respond to refugees’ lived experiences across different resettlement periods. Future research should explore these methods across other jurisdictions among forcibly displaced populations to help create more inclusive global healthcare, research, and policy agendas. Globally as forced displacement worsens and is expected to continue due to climate change, incorporating refugees’ voices through participatory research methods is vital to creating refugee-responsive health systems and achieving the WHO’s and United Nations’ 2030 sustainable development goal of Universal Health Coverage [30].
Supporting information
S1 Table. Dates of focus group meetings and their topic of discussion.
https://doi.org/10.1371/journal.pone.0323746.s001
(DOCX)
S2a Table. Raw rankings of research priorities for pre-migration/early arrival time-period.
https://doi.org/10.1371/journal.pone.0323746.s002
(DOCX)
S2b Table. Grouped priorities with similar ideas and their combined total votes.
https://doi.org/10.1371/journal.pone.0323746.s003
(DOCX)
S2c Table. Summarized similar priorities into single sentences with combined votes.
https://doi.org/10.1371/journal.pone.0323746.s004
(DOCX)\
S2d Table. Final concise one sentence summary priorities for research priorities in pre-migration/early arrival time-period (0–3 months).
https://doi.org/10.1371/journal.pone.0323746.s005
(DOCX)
S3 Study protocol. PAC Advisory Committee protocol.
https://doi.org/10.1371/journal.pone.0323746.s006
(DOCX)
S4 Study data. PAC De-Identified study data.
https://doi.org/10.1371/journal.pone.0323746.s007
(XLSX)
Acknowledgments
We thank the Calgary Refugee Health Clinic for providing us with the space to conduct our focus groups and the institutional support provided by the O’Brien Institute for Public Health at the University of Calgary Cumming School of Medicine. In particular, we thank our refugee patient advisory committee and the broader refugee community for their support, participation, and great input as the original impetus for this study. We value your time and your trust and hope that this work can inform the desired changes for newcomers.
References
1. 1. The UN Refugee Agency. Global Trends Report 2023. UNHCR. 2024 [cited 2024 Jul 26]. Available from: https://www.unhcr.org/global-trends-report-2023
2. 2. Refugee Health YYC [Internet]. 2024 [cited 2024 Jul 26]. Canadian Refugee Healthcare System Atlas. Available from: https://rh2c.org/atlas
3. 3. McKeary M, Newbold B. Barriers to care: the challenges for Canadian refugees and their health care providers. J Refugee Stud. 2010;23(4):523–45.
* View Article
* Google Scholar
4. 4. Maximova K, Krahn H. Health status of refugees settled in Alberta: changes since arrival. Can J Public Health. 2010;101(4):322–6. pmid:21033547
* View Article
* PubMed/NCBI
* Google Scholar
5. 5. Newbold B. The short-term health of Canada’s new immigrant arrivals: evidence from LSIC. Ethn Health. 2009;14(3):315–36. pmid:19263262
* View Article
* PubMed/NCBI
* Google Scholar
6. 6. Olsen J. The Nominal Group Technique (NGT) as a tool for facilitating pan-disability focus groups and as a new method for quantifying changes in qualitative data. Int J Qual Methods. 2019;18.
* View Article
* Google Scholar
7. 7. Brewer S, Boyd K, Ytell K, Lambert-Kerzner A. Improving Health by Engaging Refugees in Denver (I-HEaRD); Prioritized Health Research Agenda: An Abridged Report. [Internet]. The University of Colorado; 2019 May. p. 11. Available from: https://www.pcori.org/sites/default/files/Priortized-%20Health-Research-Agenda-FINAL-copyright2019-abridged2020.pdf
8. 8. Lau LS, Rodgers G. Cultural competence in refugee service settings: a scoping review. Health Equity. 2021;5(1):124–34. pmid:33778315
* View Article
* PubMed/NCBI
* Google Scholar
9. 9. World Health Organization. Global research agenda on health, migration and displacement: strengthening research and translating research priorities into policy and practice [Internet]. [cited 2024 Mar 22]. Available from: https://www.who.int/publications-detail-redirect/9789240082397
* View Article
* Google Scholar
10. 10. Whalen-Browne M, Talavlikar R, Brown G, McBrien K, Wiedmeyer M-L, Norrie E, et al. Cervical cancer screening by refugee category in a refugee health primary care clinic in Calgary, Canada, 2011-2016. J Immigr Minor Health. 2022;24(6):1534–42. pmid:35233682
* View Article
* PubMed/NCBI
* Google Scholar
11. 11. Fabreau GE, Holdbrook L, Peters CE, Ronksley PE, Attaran A, McBrien K, et al. Vaccines alone will not prevent COVID-19 outbreaks among migrant workers-the example of meat processing plants. Clin Microbiol Infect. 2022;28(6):773–8. pmid:35189335
* View Article
* PubMed/NCBI
* Google Scholar
12. 12. Greenaway C, Fabreau G, Pottie K. The war in Ukraine and refugee health care: considerations for health care providers in Canada. CMAJ. 2022;194(26):E911-5.
* View Article
* Google Scholar
13. 13. Immigration R and CC. Canada-Ukraine Authorization for Emergency Travel [Internet]. 2022 [cited 2024 Jul 26]. Available from: https://www.canada.ca/en/immigration-refugees-citizenship/news/2022/03/canada-ukraine-authorization-for-emergency-travel.html
* View Article
* Google Scholar
14. 14. Government of Canada SC. Canadian Community Health Survey - Annual Component (CCHS) [Internet]. 2023 [cited 2024 Jul 26]. Available from: https://www23.statcan.gc.ca/imdb/p2SV.pl?Function=getSurvey&SDDS=3226
* View Article
* Google Scholar
15. 15. Lumley-Sapanski A. The survival job trap: explaining refugee employment outcomes in Chicago and the contributing factors. J Refug Stud. 2019;34(2):2093–123.
* View Article
* Google Scholar
16. 16. Rideout C, Gil R, Browne R, Calhoon C, Rey M, Gourevitch M, et al. Using the Delphi and snow card techniques to build consensus among diverse community and academic stakeholders. Prog Community Health Partnersh. 2013;7(3):331–9. pmid:24056515
* View Article
* PubMed/NCBI
* Google Scholar
17. 17. López-Zerón G, Bilbao-Nieva M, Clements K. Conducting member checks with multilingual research participants from diverse backgrounds. J Particip Res Methods. 2021;2(2). https://jprm.scholasticahq.com/article/24412-conducting-member-checks-with-multilingual-research-participants-from-diverse-backgrounds
* View Article
* Google Scholar
18. 18. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453.
* View Article
* Google Scholar
19. 19. Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57. pmid:17872937
* View Article
* PubMed/NCBI
* Google Scholar
20. 20. Miller AB, Issa OM, Hahn E, Agalab NY, Abdi SM. Developing advisory boards within community-based participatory approaches to improve mental health among refugee communities. Prog Community Health Partnersh. 2021;15(1):107–16. pmid:33775966
* View Article
* PubMed/NCBI
* Google Scholar
21. 21. Duong DB, Holt B, Munoz C, Pollack TM. For and with people: announcing the Lancet Global Health Commission on people-centred care for universal health coverage and a call for commissioner nominations. Lancet Glob Health. 2024;12(7):e1089–90. pmid:38823407
* View Article
* PubMed/NCBI
* Google Scholar
22. 22. Grasser LR. Addressing mental health concerns in refugees and displaced populations: is enough being done?. Risk Manag Healthc Policy. 2022;15:909–22. pmid:35573980
* View Article
* PubMed/NCBI
* Google Scholar
23. 23. Filippi MK, Faseru B, Baird M, Ndikum-Moffor F, Greiner KA, Daley CM. A pilot study of health priorities of Somalis living in Kansas City: laying the groundwork for CBPR. J Immigr Minor Health. 2014;16(2):314–20. pmid:23124631
* View Article
* PubMed/NCBI
* Google Scholar
24. 24. Khanlou N, Haque N, Skinner A, Mantini A, Kurtz Landy C. Scoping review on maternal health among immigrant and refugee women in Canada: prenatal, intrapartum, and postnatal care. J Pregnancy. 2017;2017:8783294. pmid:28210508
* View Article
* PubMed/NCBI
* Google Scholar
25. 25. Parajuli J, Horey D. Barriers to and facilitators of health services utilisation by refugees in resettlement countries: an overview of systematic reviews. Aust Health Rev. 2020;44(1):132–42. pmid:30654856
* View Article
* PubMed/NCBI
* Google Scholar
26. 26. Hadgkiss EJ, Renzaho AMN. The physical health status, service utilisation and barriers to accessing care for asylum seekers residing in the community: a systematic review of the literature. Aust Health Rev. 2014;38(2):142–59. pmid:24679338
* View Article
* PubMed/NCBI
* Google Scholar
27. 27. Arya AN, Hyman I, Holland T, Beukeboom C, Tong CE, Talavlikar R, et al. Medical interpreting services for refugees in Canada: current state of practice and considerations in promoting this essential human right for all. Int J Environ Res Public Health. 2024;21(5):588. pmid:38791802
* View Article
* PubMed/NCBI
* Google Scholar
28. 28. Lee SK, Sulaiman-Hill CMR, Thompson SC. Providing health information for culturally and linguistically diverse women: priorities and preferences of new migrants and refugees. Health Promot J Austr. 2013;24(2):98–103. pmid:24168735
* View Article
* PubMed/NCBI
* Google Scholar
29. 29. Ohrnberger J, Fichera E, Sutton M. The relationship between physical and mental health: a mediation analysis. Soc Sci Med. 2017;195:42–9.
* View Article
* Google Scholar
30. 30. World Health Organization [Internet]. 2023 [cited 2024 Jul 26]. Universal health coverage (UHC). Available from: https://www.who.int/news-room/fact-sheets/detail/universal-health-coverage-(uhc)
Citation: Altahsh D, Holdbrook L, Norrie E, Sahilie A, Essar MY, Grewal R, et al. (2025) Empowering refugee voices: Using Nominal Group Technique (NGT) with a diverse refugee Patient Advisory Committee (PAC) to identify health and research priorities in Calgary, Canada. PLoS One 20(5): e0323746. https://doi.org/10.1371/journal.pone.0323746
About the Authors:
Deyana Altahsh
Roles: Conceptualization, Data curation, Formal analysis, Methodology, Visualization, Writing – original draft
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, Alberta, Canada
ORICD: https://orcid.org/0009-0008-0233-7893
Linda Holdbrook
Roles: Conceptualization, Funding acquisition, Methodology, Writing – review & editing
Affiliation: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada
Eric Norrie
Roles: Data curation, Formal analysis, Methodology, Software, Writing – review & editing
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
ORICD: https://orcid.org/0000-0002-7762-8061
Adanech Sahilie
Roles: Data curation, Methodology, Resources, Writing – review & editing
Affiliation: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada
Mohammad Yasir Essar
Roles: Writing – review & editing
Affiliation: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada
Rabina Grewal
Roles: Data curation, Visualization
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
ORICD: https://orcid.org/0009-0006-7134-0864
Olha Horbach
Roles: Data curation, Writing – review & editing
Affiliation: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada
Fawzia Abdaly
Roles: Data curation, Writing – review & editing
Affiliation: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada
Maria Santana
Roles: Methodology, Writing – review & editing
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada, Departments of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
Rachel Talavlikar
Roles: Resources, Writing – review & editing
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Family Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
Michael Aucoin
Roles: Resources, Writing – review & editing
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Family Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
Annalee Coakley
Roles: Methodology, Resources, Writing – review & editing
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Family Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
Gabriel E. Fabreau
Roles: Funding acquisition, Investigation, Methodology, Project administration, Resources, Supervision, Validation, Writing – review & editing
E-mail: [email protected]
Affiliations: Refugee Health YYC, O’Brien Institute for Public Health, Cumming School of Medicine, University of Calgary, Calgary, Canada, Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada, Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
ORICD: https://orcid.org/0000-0001-8783-7556
[/RAW_REF_TEXT]
[/RAW_REF_TEXT]
[/RAW_REF_TEXT]
[/RAW_REF_TEXT]
1. The UN Refugee Agency. Global Trends Report 2023. UNHCR. 2024 [cited 2024 Jul 26]. Available from: https://www.unhcr.org/global-trends-report-2023
2. Refugee Health YYC [Internet]. 2024 [cited 2024 Jul 26]. Canadian Refugee Healthcare System Atlas. Available from: https://rh2c.org/atlas
3. McKeary M, Newbold B. Barriers to care: the challenges for Canadian refugees and their health care providers. J Refugee Stud. 2010;23(4):523–45.
4. Maximova K, Krahn H. Health status of refugees settled in Alberta: changes since arrival. Can J Public Health. 2010;101(4):322–6. pmid:21033547
5. Newbold B. The short-term health of Canada’s new immigrant arrivals: evidence from LSIC. Ethn Health. 2009;14(3):315–36. pmid:19263262
6. Olsen J. The Nominal Group Technique (NGT) as a tool for facilitating pan-disability focus groups and as a new method for quantifying changes in qualitative data. Int J Qual Methods. 2019;18.
7. Brewer S, Boyd K, Ytell K, Lambert-Kerzner A. Improving Health by Engaging Refugees in Denver (I-HEaRD); Prioritized Health Research Agenda: An Abridged Report. [Internet]. The University of Colorado; 2019 May. p. 11. Available from: https://www.pcori.org/sites/default/files/Priortized-%20Health-Research-Agenda-FINAL-copyright2019-abridged2020.pdf
8. Lau LS, Rodgers G. Cultural competence in refugee service settings: a scoping review. Health Equity. 2021;5(1):124–34. pmid:33778315
9. World Health Organization. Global research agenda on health, migration and displacement: strengthening research and translating research priorities into policy and practice [Internet]. [cited 2024 Mar 22]. Available from: https://www.who.int/publications-detail-redirect/9789240082397
10. Whalen-Browne M, Talavlikar R, Brown G, McBrien K, Wiedmeyer M-L, Norrie E, et al. Cervical cancer screening by refugee category in a refugee health primary care clinic in Calgary, Canada, 2011-2016. J Immigr Minor Health. 2022;24(6):1534–42. pmid:35233682
11. Fabreau GE, Holdbrook L, Peters CE, Ronksley PE, Attaran A, McBrien K, et al. Vaccines alone will not prevent COVID-19 outbreaks among migrant workers-the example of meat processing plants. Clin Microbiol Infect. 2022;28(6):773–8. pmid:35189335
12. Greenaway C, Fabreau G, Pottie K. The war in Ukraine and refugee health care: considerations for health care providers in Canada. CMAJ. 2022;194(26):E911-5.
13. Immigration R and CC. Canada-Ukraine Authorization for Emergency Travel [Internet]. 2022 [cited 2024 Jul 26]. Available from: https://www.canada.ca/en/immigration-refugees-citizenship/news/2022/03/canada-ukraine-authorization-for-emergency-travel.html
14. Government of Canada SC. Canadian Community Health Survey - Annual Component (CCHS) [Internet]. 2023 [cited 2024 Jul 26]. Available from: https://www23.statcan.gc.ca/imdb/p2SV.pl?Function=getSurvey&SDDS=3226
15. Lumley-Sapanski A. The survival job trap: explaining refugee employment outcomes in Chicago and the contributing factors. J Refug Stud. 2019;34(2):2093–123.
16. Rideout C, Gil R, Browne R, Calhoon C, Rey M, Gourevitch M, et al. Using the Delphi and snow card techniques to build consensus among diverse community and academic stakeholders. Prog Community Health Partnersh. 2013;7(3):331–9. pmid:24056515
17. López-Zerón G, Bilbao-Nieva M, Clements K. Conducting member checks with multilingual research participants from diverse backgrounds. J Particip Res Methods. 2021;2(2). https://jprm.scholasticahq.com/article/24412-conducting-member-checks-with-multilingual-research-participants-from-diverse-backgrounds
18. Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453.
19. Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57. pmid:17872937
20. Miller AB, Issa OM, Hahn E, Agalab NY, Abdi SM. Developing advisory boards within community-based participatory approaches to improve mental health among refugee communities. Prog Community Health Partnersh. 2021;15(1):107–16. pmid:33775966
21. Duong DB, Holt B, Munoz C, Pollack TM. For and with people: announcing the Lancet Global Health Commission on people-centred care for universal health coverage and a call for commissioner nominations. Lancet Glob Health. 2024;12(7):e1089–90. pmid:38823407
22. Grasser LR. Addressing mental health concerns in refugees and displaced populations: is enough being done?. Risk Manag Healthc Policy. 2022;15:909–22. pmid:35573980
23. Filippi MK, Faseru B, Baird M, Ndikum-Moffor F, Greiner KA, Daley CM. A pilot study of health priorities of Somalis living in Kansas City: laying the groundwork for CBPR. J Immigr Minor Health. 2014;16(2):314–20. pmid:23124631
24. Khanlou N, Haque N, Skinner A, Mantini A, Kurtz Landy C. Scoping review on maternal health among immigrant and refugee women in Canada: prenatal, intrapartum, and postnatal care. J Pregnancy. 2017;2017:8783294. pmid:28210508
25. Parajuli J, Horey D. Barriers to and facilitators of health services utilisation by refugees in resettlement countries: an overview of systematic reviews. Aust Health Rev. 2020;44(1):132–42. pmid:30654856
26. Hadgkiss EJ, Renzaho AMN. The physical health status, service utilisation and barriers to accessing care for asylum seekers residing in the community: a systematic review of the literature. Aust Health Rev. 2014;38(2):142–59. pmid:24679338
27. Arya AN, Hyman I, Holland T, Beukeboom C, Tong CE, Talavlikar R, et al. Medical interpreting services for refugees in Canada: current state of practice and considerations in promoting this essential human right for all. Int J Environ Res Public Health. 2024;21(5):588. pmid:38791802
28. Lee SK, Sulaiman-Hill CMR, Thompson SC. Providing health information for culturally and linguistically diverse women: priorities and preferences of new migrants and refugees. Health Promot J Austr. 2013;24(2):98–103. pmid:24168735
29. Ohrnberger J, Fichera E, Sutton M. The relationship between physical and mental health: a mediation analysis. Soc Sci Med. 2017;195:42–9.
30. World Health Organization [Internet]. 2023 [cited 2024 Jul 26]. Universal health coverage (UHC). Available from: https://www.who.int/news-room/fact-sheets/detail/universal-health-coverage-(uhc)
You have requested "on-the-fly" machine translation of selected content from our databases. This functionality is provided solely for your convenience and is in no way intended to replace human translation. Show full disclaimer
Neither ProQuest nor its licensors make any representations or warranties with respect to the translations. The translations are automatically generated "AS IS" and "AS AVAILABLE" and are not retained in our systems. PROQUEST AND ITS LICENSORS SPECIFICALLY DISCLAIM ANY AND ALL EXPRESS OR IMPLIED WARRANTIES, INCLUDING WITHOUT LIMITATION, ANY WARRANTIES FOR AVAILABILITY, ACCURACY, TIMELINESS, COMPLETENESS, NON-INFRINGMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE. Your use of the translations is subject to all use restrictions contained in your Electronic Products License Agreement and by using the translation functionality you agree to forgo any and all claims against ProQuest or its licensors for your use of the translation functionality and any output derived there from. Hide full disclaimer
© 2025 Altahsh et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.
Abstract
Background
Despite rising forced displacement globally, refugees’ health and research priorities are largely unknown. We investigated whether a diverse refugee committee could utilize participatory methods to identify health priorities and a research agenda to address them.
Methods
We conducted a qualitative study with focus groups of current and former refugees, asylum claimants and evacuees from a specialized refugee clinic over a year in Calgary, Alberta, Canada. We collected sociodemographic data using standardized instruments, then utilized a four-step nominal group technique process (idea generation, recording, discussion, and voting) to identify and rank participants’ health and research priorities. Participants ranked their top five priorities across three time periods: Pre-migration/early arrival (0–3 months), post-migration (3 months–2 years), and long-term health (>2 years). Participants created overarching priorities and corroborated findings via a member checking step.
Findings
Twenty-three participants (median age 35 years) attended one or more of five focus groups. Twenty-one completed sociodemographic surveys: 16/21 (76%) were women, representing 8 countries of origin. Participants identified “more family physicians” and “improving health system navigation” (11/60 votes each) as top health and research priorities respectively across all resettlement periods. Participants also prioritized pre-departure healthcare system orientation and improved post-arrival and long-term mental health services. Twelve participants completed the member checking process, affirming the results with minor clarifications.
Interpretation
This proof-of-concept study illustrates how refugees can use a rigorous consensus process without external influence to prioritize their healthcare needs, direct a health research agenda to address those needs, and co-produce research. These low-cost participatory methods should be replicated elsewhere.
You have requested "on-the-fly" machine translation of selected content from our databases. This functionality is provided solely for your convenience and is in no way intended to replace human translation. Show full disclaimer
Neither ProQuest nor its licensors make any representations or warranties with respect to the translations. The translations are automatically generated "AS IS" and "AS AVAILABLE" and are not retained in our systems. PROQUEST AND ITS LICENSORS SPECIFICALLY DISCLAIM ANY AND ALL EXPRESS OR IMPLIED WARRANTIES, INCLUDING WITHOUT LIMITATION, ANY WARRANTIES FOR AVAILABILITY, ACCURACY, TIMELINESS, COMPLETENESS, NON-INFRINGMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE. Your use of the translations is subject to all use restrictions contained in your Electronic Products License Agreement and by using the translation functionality you agree to forgo any and all claims against ProQuest or its licensors for your use of the translation functionality and any output derived there from. Hide full disclaimer