Content area

Abstract

Background

Rheumatic diseases significantly affects quality of life, making self-management critical. The Illness Intrusiveness Rating Scale (IIRS) measures the extent to which illness interferes with various life domains, but until now it has not been translated into Danish.

Objective

This study aimed to translate the IIRS into Danish and assess its psychometric properties in Danish patients with a rheumatic disease.

Methods

Following COSMIN guidelines, the IIRS was translated and culturally adapted through a multi-step process, including forward and backward translations and cognitive interviews. Psychometric testing included assessments of internal construct validity by confirmatory factor analysis, internal consistency by Cronbach’s α, reliability by test–retest, standard error of measurement, and responsiveness by minimal detectable change.

Results

The final Danish version was well-understood, though minor issues arose, such as the relevance of “religious expression.” The scale demonstrated high internal consistency (Cronbach’s α = 0.92). Confirmatory factor analysis confirmed the original three-factor structure with an acceptable model fit (comparative fit index = 0.94, the Root Mean Square Error of Approximation = 0.10). Strong correlations were found within “Relationships and Personal Development” and “Instrumental” domains, but the “Diet” item did not meet factor assignment criteria. Test–retest reliability was acceptable (intraclass correlation coefficients ≥ 0.70 for most items).

Conclusion

The Danish IIRS showed strong psychometric properties, making it a reliable and valid tool for assessing illness impact and self-management interventions in Danish patients with rheumatic disease.

Key points

The scale was well-received by participants, with minimal missing data.

The Danish IIRS showed high internal consistency, acceptable test–retest reliability, and confirmed its three-factor structure.

The validated Danish IIRS is a reliable tool for assessing illness impact.

Details

1009240
Title
Validation of the Danish translation of the illness intrusiveness rating scale in patients with rheumatic disease
Author
Lindgren, Luise Holberg 1   VIAFID ORCID Logo  ; Devins, Gerald M. 2 ; Holt, Kamila 3   VIAFID ORCID Logo  ; Jørgensen, Jacob Brauner 1   VIAFID ORCID Logo  ; Esbensen, Bente Appel 4   VIAFID ORCID Logo 

 Rigshospitalet, Copenhagen Center for Arthritis Research (Copecare), Copenhagen, Denmark (GRID:grid.475435.4) 
 University of Toronto, Toronto, Canada (GRID:grid.17063.33) (ISNI:0000 0001 2157 2938) 
 The Danish Rheumatism Association, Sano Skaelskør, Skaelskør, Denmark (GRID:grid.453380.9) (ISNI:0000 0004 4667 545X) 
 Rigshospitalet, Copenhagen Center for Arthritis Research (Copecare), Copenhagen, Denmark (GRID:grid.475435.4); Copenhagen University, Copenhagen, Denmark (GRID:grid.5254.6) (ISNI:0000 0001 0674 042X) 
Publication title
Volume
5
Issue
1
Pages
86
Publication year
2025
Publication date
Dec 2025
Publisher
Springer Nature B.V.
Place of publication
Richmond
Country of publication
Netherlands
Publication subject
e-ISSN
27314537
Source type
Scholarly Journal
Language of publication
English
Document type
Journal Article
Publication history
 
 
Online publication date
2025-09-29
Milestone dates
2025-08-22 (Registration); 2025-03-13 (Received); 2025-08-22 (Accepted)
Publication history
 
 
   First posting date
29 Sep 2025
ProQuest document ID
3255943030
Document URL
https://www.proquest.com/scholarly-journals/validation-danish-translation-illness/docview/3255943030/se-2?accountid=208611
Copyright
© The Author(s) 2025. This work is published under http://creativecommons.org/licenses/by-nc-nd/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.
Last updated
2025-10-01
Database
ProQuest One Academic