Abstract

Doc number: P5

Details

Title
National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Author
Alonso, Verónica; Abaitua, Ignacio; Zurriaga, Óscar; Astray, Jenaro; Errezola, Manuel; Aldana-Espinal, Josefa M; Margolles, Mario J; Jiménez, Josep; Palomar, Joaquín A; Santana, Milagrosa; Ramalle-Gomarra, Enrique; Ramos, Julián M; Arribas, Federico E; Álamo, Rufino; Gutiérrez-Ávila, Gonzalo; Galmés, Antònia; García-Ribes, Miguel; Navarro, Carmen; Ardanaz, Eva; de la Paz, Manuel Posada
Publication year
2014
Publication date
2014
Publisher
BioMed Central
e-ISSN
17501172
Source type
Scholarly Journal
Language of publication
English
DOI
https://doi.org/10.1186/1750-1172-9-S1-P5
ProQuest document ID
1622948171
Copyright
© 2014 Alonso et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.