Abstract

We herein outline the rationale for a Swedish cohort consortium, aiming to facilitate greater use of Swedish cohorts for world-class research. Coordination of all Swedish prospective population-based cohorts in a common infrastructure would enable more precise research findings and facilitate research on rare exposures and outcomes, leading to better utilization of study participants’ data, better return of funders’ investments, and higher benefit to patients and populations. We motivate the proposed infrastructure partly by lessons learned from a pilot study encompassing data from 21 cohorts. We envisage a standing Swedish cohort consortium that would drive development of epidemiological research methods and strengthen the Swedish as well as international epidemiological competence, community, and competitiveness.

Details

Title
Rationale for a Swedish cohort consortium
Author
Sundström, Johan 1   VIAFID ORCID Logo  ; Björkelund, Cecilia 2 ; Giedraitis, Vilmantas 3 ; Hansson, Per-Olof 4 ; Högman, Marieann 5   VIAFID ORCID Logo  ; Janson, Christer 5 ; Koupil, Ilona 6 ; Kristenson, Margareta 7 ; Lagerros, Ylva Trolle 8 ; Leppert, Jerzy 9 ; Lind, Lars 5 ; Lissner, Lauren 10 ; Johansson, Ingegerd 11 ; Ludvigsson, Jonas F 12 ; Nilsson, Peter M 13 ; Olsson, Håkan 14   VIAFID ORCID Logo  ; Pedersen, Nancy L 15   VIAFID ORCID Logo  ; Rosenblad, Andreas 9 ; Rosengren, Annika 4 ; Sandin, Sven 16 ; Snäckerström, Tomas 17 ; Stenbeck, Magnus 18 ; Söderberg, Stefan 19 ; Weiderpass, Elisabete 20   VIAFID ORCID Logo  ; Wanhainen, Anders 21 ; Wennberg, Patrik 22 ; Fortier, Isabel 23 ; Heller, Susanne 17 ; Storgärds, Maria 17 ; Svennblad, Bodil 17 

 Department of Medical Sciences, Uppsala University, Uppsala, Sweden;; Uppsala Clinical Research Center (UCR), Uppsala, Sweden; 
 Department of Public Health and Community Medicine/Primary Health Care, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 
 Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden; 
 Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 
 Department of Medical Sciences, Uppsala University, Uppsala, Sweden; 
 Department of Public Health Sciences, Stockholm University, Stockholm, Sweden;; Department of Public Health Sciences, Karolinska Institutet, Stockholm, Sweden; 
 Department of Medical and Health Sciences, Division of Community Medicine, Linköping University, Linköping, Sweden; 
 Department of Medicine, Unit of Clinical Epidemiology, Karolinska Institutet, Stockholm, Sweden;; Department of Endocrinology, Metabolism and Diabetes, Karolinska University Hospital Huddinge, Huddinge, Sweden; 
 Västerås Centre for Clinical Research, Uppsala University, Uppsala, Sweden; 
10  Department of Public Health and Community Medicine/Epidemiology and Social Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 
11  Department of Odontology, School of Dentistry, Umeå University, Umeå, Sweden; 
12  Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden;; Department of Pediatrics, Örebro University Hospital, Örebro University, Örebro, Sweden; 
13  Department of Clinical Sciences, Skane University Hospital, Malmö, Lund University, Lund, Sweden; 
14  Department of Clinical Sciences, Cancer Epidemiology, Lund University, Lund, Sweden; 
15  Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; 
16  Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden;; Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA;; Seaver Autism Center for Research and Treatment at Mount Sinai, New York, NY, USA; 
17  Uppsala Clinical Research Center (UCR), Uppsala, Sweden; 
18  Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden; 
19  Department of Public Health and Clinical Medicine, and Heart Center, Umeå University, Umeå, Sweden; 
20  Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden;; Department of Research, Cancer Registry of Norway, Institute of Population-Based Cancer Research, Oslo, Norway;; Genetic Epidemiology Group, Folkhälsan Research Center, Faculty of Medicine, Helsinki University, Helsinki, Finland;; Department of Community Medicine, University of Tromsø, The Arctic University of Norway, Tromsø, Norway; 
21  Department of Surgical Sciences, Uppsala University, Uppsala, Sweden; 
22  Department of Public Health and Clinical Medicine, Family Medicine, Umeå University, Umeå, Sweden, and; 
23  Research Institute of the McGill University Health Centre, Montreal, Canada 
End page
28
Publication year
2019
Publication date
Jan 2019
Publisher
Open Academia
ISSN
03009734
e-ISSN
20001967
Source type
Scholarly Journal
Language of publication
English
ProQuest document ID
2354223590
Copyright
© 2019 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This work is licensed under the Creative Commons Attribution License http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.