Abstract

Background

Basal cell carcinoma (BCC) is a slow-growing, rarely lethal skin cancer that affects people 65 years or older. A range of treatment options exist for BCC, but there is little evidence available to guide patients and providers in selecting the best treatment options.

Objectives

This study outlines the development of a patient decision aid (PDA) for low-risk BCC that can be used by patients and providers to assist in shared decision-making.

Methods

In accordance with the International Patient Decision Aids Standards (IPDAS) Collaboration framework, feedback from focus groups and semi-structured interviews with patients and providers, an initial prototype of the PDA was developed. This was tested using cognitive interviews and iteratively updated.

Results

We created eighteen different iterations using feedback from 24 patients and 34 providers. The key issues identified included: 1) Addressing fear of cancer; 2) Communicating risk and uncertainty; 3) Values clarification; and 4) Time lag to benefit.

Limitations

The PDA does not include all possible treatment options and is currently paper based.

Conclusions

Our PDA has been specifically adapted and designed to support patients with a limited life expectancy in making decisions about their low risk BCC together with their doctors.

Details

Title
Development of a patient decision aid for the management of superficial basal cell carcinoma (BCC) in adults with a limited life expectancy
Author
Junn, Alexandra; Shukla, Neha R; Morrison, Lily; Halley, Meghan; Mary-Margaret Chren; Walter, Louise C; Frosch, Dominick L; Matlock, Dan; Torres, Jeanette S; Linos, Eleni  VIAFID ORCID Logo 
Pages
1-8
Section
Research article
Publication year
2020
Publication date
2020
Publisher
BioMed Central
e-ISSN
14726947
Source type
Scholarly Journal
Language of publication
English
ProQuest document ID
2404280793
Copyright
© 2020. This work is licensed under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.