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© 2021. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.

Abstract

Objective: To analyze the experiences of families in the exercise of the rights of children with chronic conditions in public health, education and social assistance institutions. Method: ethnographic multiple case study, with qualitative approach, following the theoretical approach of Boaventura Santos. Experiences of the families of these children in a city were studied through interviews with family members, managers and professionals from social institutions (35), participant observations in social spaces (13) and creation of eco-maps (3). Critical Discourse Analysis was performed. Results: the offer of services is lower than the demand, and exclusion processes persist. Given the hegemony of neoliberal and normality ideologies, meetings between family members and professionals revealed obstacles to civil rights; however, when these ideologies were challenged, the realization of their rights was enhanced. Final considerations: the care to promote civil rights requires family members, managers and professionals to develop subjectivities that overcome neoliberal and normality ideologies, recognizing these children as subjects of law.

Details

Title
Guarantee of the social rights of children with chronic conditions: reinventing care towards civil rights
Author
Tavares, Tatiana Silva 1 ; Silva, Kenia Lara 1 ; De Lima, Regina Garcia 2 ; Duarte, Elysângela Dittz 1 

 Universidade Federal de Minas Gerais. Belo Horizonte, Minas Gerais, Brazil 
 Universidade de Sao Paulo. Ribeirao Preto, Sao Paulo, Brazil 
Pages
1-10
Section
ORIGINAL ARTICLE
Publication year
2021
Publication date
2021
Publisher
Associação Brasileira de Enfermagem
ISSN
00347167
e-ISSN
19840446
Source type
Scholarly Journal
Language of publication
English
ProQuest document ID
2530035184
Copyright
© 2021. This work is published under https://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.