Abstract

Background: This article summarizes the European Renal Association – European Dialysis and Transplant Association Registry’s 2014 annual report. It describes the epidemiology of renal replacement therapy (RRT) for end-stage renal disease (ESRD) in 2014 within 35 countries.

Methods: In 2016, the ERA-EDTA Registry received data on patients who in 2014 where undergoing RRT for ESRD, from 51 national or regional renal registries. Thirty-two registries provided individual patient level data and 19 provided aggregated patient level data. The incidence, prevalence and survival probabilities of these patients were determined.

Results: In 2014, 70 953 individuals commenced RRT for ESRD, equating to an overall unadjusted incidence rate of 133 per million population (pmp). The incidence ranged by 10-fold; from 23 pmp in the Ukraine to 237 pmp in Portugal. Of the patients commencing RRT, almost two-thirds were men, over half were aged ≥65 years and a quarter had diabetes mellitus as their primary renal diagnosis. By day 91 of commencing RRT, 81% of patients were receiving haemodialysis. On 31 December 2014, 490 743 individuals were receiving RRT for ESRD, equating to an unadjusted prevalence of 924 pmp. This ranged throughout Europe by more than 10-fold, from 157 pmp in the Ukraine to 1794 pmp in Portugal. In 2014, 19 406 kidney transplantations were performed, equating to an overall unadjusted transplant rate of 36 pmp. Again this varied considerably throughout Europe. For patients commencing RRT during 2005–09, the 5-year-adjusted patient survival probabilities on all RRT modalities was 63.3% (95% confidence interval 63.0–63.6). The expected remaining lifetime of a 20- to 24-year-old patient with ESRD receiving dialysis or living with a kidney transplant was 21.9 and 44.0 years, respectively. This was substantially lower than the 61.8 years of expected remaining lifetime of a 20-year-old patient without ESRD.

Details

Title
The European Renal Association – European Dialysis and Transplant Association Registry Annual Report 2014: a summary
Author
Pippias, Maria 1 ; Kramer, Anneke 1 ; Noordzij, Marlies 1 ; Afentakis, Nikolaos 2 ; Ramón Alonso de la Torre 3 ; Ambühl, Patrice M 4 ; Aparicio Madre, Manuel I 5 ; Felipe Arribas Monzón 6 ; Åsberg, Anders 7 ; Bonthuis, Marjolein 8 ; Encarnación Bouzas Caamaño 9 ; Bubic, Ivan 10 ; Caskey, Fergus J 11 ; Pablo Castro de la Nuez 12 ; Cernevskis, Harijs 13 ; Maria de los Ángeles Garcia Bazaga 14 ; Jean-Marin, des Grottes 15 ; Raquel Fernández González 16 ; Ferrer-Alamar, Manuel 17 ; Finne, Patrik 18 ; Garneata, Liliana 19 ; Golan, Eliezer 20 ; Heaf, James G 21 ; Hemmelder, Marc H 22 ; Idrizi, Alma 23 ; Ioannou, Kyriakos 24 ; Jarraya, Faical 25 ; Kantaria, Nino 26 ; Kolesnyk, Mykola 27 ; Kramar, Reinhard 28 ; Lassalle, Mathilde 29 ; Lezaic, Visnja V 30 ; Lopot, Frantisek 31 ; Macario, Fernando 32 ; Magaz, Ángela 33 ; Angel L Martín de Francisco 34 ; Eduardo Martín Escobar 35 ; Alberto Martínez Castelao 36 ; Metcalfe, Wendy 37 ; Inmaculada Moreno Alia 38 ; Nordio, Maurizio 39 ; Ots-Rosenberg, Mai 40 ; Palsson, Runolfur 41 ; Ratkovic, Marina 42 ; Resic, Halima 43 ; Rutkowski, Boleslaw 44 ; Carmen Santiuste de Pablos 45 ; Seyahi, Nurhan 46 ; María Fernanda Slon Roblero 47 ; Spustova, Viera 48 ; Stas, Koenraad JF 49 ; Stendahl, María E 50 ; Olivera Stojceva-Taneva 51 ; Vazelov, Evgueniy 52 ; Ziginskiene, Edita 53 ; Massy, Ziad 54 ; Jager, Kitty J 1 ; Stel, Vianda S 1 

1  ERA-EDTA Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands 
2  Hellenic Renal Registry, Board of Registry, Coordination and Control of RRT, General Hospital of Athens ‘G. Gennimatas’, Athens, Greece 
3  Public Health Directorate, Asturias, Spain 
4  Swiss Dialysis Registry, Renal Division, Stadtspital Waid, Zurich, Switzerland 
5  Registro Madrileño de Enfermos Renales (REMER), Oficina Regional de Coordinación de Trasplantes, Madrid, Spain 
6  Aragon Renal Registry, Coordinación de Trasplantes de Aragón, Zaragoza, Spain 
7  Norwegian Renal Registry, Department of Transplant Medicine, Oslo University Hospital – Rikshospitalet, Oslo, Norway 
8  ESPN/ERA-EDTA Registry, Department of Medical Informatics, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands 
9  Regional Transplant Coordination Office, Galicia, Spain 
10  Department of Internal Medicine, Clinical Hospital Centre Rijeka, School of Medicine University of Rijeka, Rijeka, Croatia 
11  UK Renal Registry, Learning and Research, Southmead Hospital, Bristol, UK 
12  Information System of Regional Transplant Coordination in Andalucia (SICATA), Andalucia, Spain 
13  Department of Internal Medicine, Riga Stradins University, Riga, Latvia 
14  Dirección General de Salud Pública, Servicio Extremeño de Salud, Consejería de Sanidad y Políticas Sociales, Junta de Extremadura, Cáceres, Spain 
15  CHU Tivoli, La Louvière, Belgium 
16  Registro de Enfermos Renales de Castilla y León, Coordinación de Trasplantes, Castilla y León, Spain 
17  Técnico Registro de Enfermos Renales Comunitat Valenciana, Servicio de Estudios Epidemiológicos y Registros Sanitarios, Subdirección General Epidemiología, Dirección General Salut Pública, Consellería Sanitat, Valencian Region, Spain 
18  Department of Nephrology, Helsinki University Central Hospital, Helsinki, Finland; Finnish Registry for Kidney Diseases, Helsinki, Finland 
19  Department of Internal Medicine and Nephrology ‘Dr Carol Davila’ Teaching Hospital of Nephrology, ‘Carol Davila’ University of Medicine and Pharmacy, Bucharest, Romania 
20  Department of Nephrology and Hypertension, Meir Medical Center, Kfar-Saba and Sackler Faculty of Medicine, Tel Aviv, Israel 
21  Department of Medicine, Zealand University Hospital, Roskilde, Denmark 
22  Dutch Renal Registry (Renine), Nefrovisie, Utrecht, The Netherlands 
23  Service of Nephrology, UHC ‘Mother Teresa’, Tirana, Albania 
24  Nephrology Department, Nicosia General Hospital, Nicosia, Cyprus 
25  Research Unit 12ES14, Faculty of Medicine, Sfax University and Hedi Chaker University Hospital, Sfax, Tunisia 
26  Department of Internal Medicine, Tbilisi State Medical University, Tbilisi, Georgia 
27  Main Coordinator of National Register of CKD and AKI Patients, State Institute of Nephrology, National Academy of Medical Sciences of Ukraine, Kiev, Ukraine 
28  Austrian Dialysis and Transplant Registry, Rohr, Austria 
29  REIN Registry, Agence de la Biomédecine, Paris, France 
30  Department of Nephrology, Clinical Centre of Serbia, Belgrade, Serbia 
31  Department of Medicine, General University Hospital and 1st Charles University Medical School, Strahov, Czech Republic 
32  Nephrology Department, Portuguese Society of Nephrology, University Hospital of Coimbra, Coimbra, Portugal 
33  Unidad de Información sobre Pacientes Renales de la Comunidad Autónoma del País Vasco (UNIPAR), Basque Country, Spain 
34  Servicio de Nefrología, Hospital Universitario Valdecilla, Santander, Cantabria, Spain 
35  Registro Español de Enfermos Renales (REER), Organización Nacional de Trasplantes, Madrid, Spain 
36  Member of the Catalan Renal Registry Committee, Hospital Universitari de Bellvitge, L’Hospitalet de Llobregat, Barcelona, Spain 
37  Scottish Renal Registry, Meridian Court, ISD Scotland, Glasgow, UK 
38  Registro de Enfermos Renales en Tratamiento Sustitutivo de Castilla-La Mancha, Servicio de Epidemiología, Dirección General de Salud Pública y Consumo Castilla-La Mancha, Toledo, Spain 
39  Nephrology and Dialysis Unit, AULSS 15, Veneto, Italy 
40  Department of Internal Medicine, Faculty of Medicine, Institute of Clinical Medicine, Tartu University, Tartu, Estonia 
41  Division of Nephrology, Landspitali – The National University Hospital of Iceland, Reykjavík, Iceland; Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland 
42  Nephrology and Hemodialysis Department, Clinical Center of Montenegro, Ljubljanska, Montenegro 
43  Head of Clinic for Hemodialysis, Clinical Center University of Sarajevo, Sarajevo, Bosnia and Herzegovina 
44  Polish Renal Registry, Department of Nephrology, Transplantology and Internal Medicine, Medical University, Gdansk, Poland 
45  Registro de Enfermos Renales de la Región de Murcia, Servicio de Epidemiología, Consejería de Sanidad, IMIB-Arrixaca, Murcia, Spain 
46  Department of Internal Medicine, Cerrahpasa Medical Faculty, Division of Nephrology, Istanbul University, Istanbul, Turkey 
47  Consultant Nephrologist at Complejo Hospitalario de Navarra, Complejo Hospitalario de Navarra, Pamplona, Navarra, Spain 
48  Slovak Medical University, Bratislava, Slovakia 
49  Dienst Nefrologie, Jessa Ziekenhuis, Campus Virga Jesse, Hasselt, Belgium 
50  Swedish Renal Registry, Department of Medicine, Ryhov County Hospital, Jonkoping, Sweden 
51  University Clinic of Nephrology, Medical Faculty of Skopje, Skopje, Macedonia 
52  Dialysis Clinic, ‘Alexandrovska’ University Hospital, Sofia Medical University, Sofia, Bulgaria 
53  Lithuanian Nephrology, Dialysis and Transplantation Association, Kaunas, Lithuania; Department of Nephrology, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania; Nephrological Clinic, Hospital of Lithuanian University of Health Sciences Kaunas Clinics, Kaunas, Lithuania 
54  Division of Nephrology, Ambroise Paré University Hospital, APHP, Boulogne-Billancourt, France; Institut National de la Santé et de la Recherche Médicale (INSERM) U1018, Team 5, CESP UVSQ, and University Paris Saclay, Villejuif, France 
Pages
154-169
Publication year
2017
Publication date
Apr 2017
Publisher
Oxford University Press
ISSN
20488505
e-ISSN
20488513
Source type
Scholarly Journal
Language of publication
English
DOI
https://doi.org/10.1093/ckj/sfw135
ProQuest document ID
3169509914
Copyright
© The Author 2017. Published by Oxford University Press on behalf of ERA-EDTA. This work is published under http://creativecommons.org/licenses/by-nc/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.