1. Introduction
In recent decades, our societies, in order to face the increment in life expectancy, have undergone significant transformations, due in part to a new perspective on gender roles and the progressive aging of the population. These challenges have rarely been analyzed together, though data suggest that their interaction warrants greater attention than it has received so far.
First, the number of dependent individuals requiring home care from informal caregivers within their support network is increasing significantly each year. In addition, particularly after the pandemic, more older people are choosing to age at home [1]. Second, the traditional life expectancy gap between men and women has been narrowing in Europe [2], meaning that more men are now taking on the role of informal caregivers at home. Third, despite that, it is necessary to confront directly the persistent notion that masculinity is incompatible with household tasks, a sentiment that has shaped the life course of many men and limited their involvement in caregiving tasks [3], as this role is often perceived as inherently feminine [4,5]. Fourth, evidence indicates that men and women do not experience the same level of stress as informal caregivers [6,7], which could affect the quality of care received by the care recipient. Novelty, imbalance in tasks, and duty proportion impact on the quality and efficacy of the labor delivered [8]. Fifth, we are expanding our understanding of the unintentional errors that informal caregivers make in managing medication or providing home care [9,10]. A key contributor to these errors is the lack of adequate training, which not only affects the well-being of the care recipients but also undermines caregivers’ confidence and self-perception in their role.
Subjected to the former gender bias, women have played a central role in home caregiving, while men have been less involved in these tasks [6,11]. Women have tended to take responsibility for domestic tasks and the health care of the family, including both children and husbands, even when both partners were engaged in paid work [12]. However, it is now increasingly common for men to assume the role of primary caregivers for their partners at home when they present a higher level of incapacity and dependency. This shift in domestic responsibilities presents new challenges for deinstitutionalization policies, as it may increase risks for dependent women and undermine equity if older men prematurely give up their role as informal caregivers due to their unfamiliarity with many necessary household and caregiving tasks [8].
1.1. Older People Care by Family Caregivers in Spain
Over 20% of Spain’s population is over 65, a figure expected to grow significantly in the coming decades. Spain’s strong familial culture emphasizes family responsibility for elder care, with many older adults preferring to remain at home, supported by relatives [13]. Recipients with limited autonomy may receive government financial assistance to cover the costs of hiring an informal caregiver at home or to provide economic compensation to a family member who takes on this role. In recent years, a growing number of immigrant women, often without formal caregiver qualifications, have joined the ranks of informal caregivers. This model faces challenges from increasing care demands, evolving family structures, economic pressures, and limited access to professional services.
1.2. Gender Gaps in Informal Caregiving
Understanding these dynamics and their consequences is crucial for developing policies and support programs for older people, particularly considering the evolving nature of the care economy. A better understanding of the challenges faced by caregivers over 65 years old, considering the socioeconomic changes in developed countries, would allow for more effective policy recommendations that could improve the well-being of both care recipients and their caregivers. Programs designed to train informal caregivers should account for these differences and provide tailored support to meet the needs of diverse caregiver profiles. This study explores gender differences in informal caregiving roles among older adults, focusing on the proportion of men and women involved, their caregiving motivation, training received, emotional burden, time for self-care, and caregiving performance, including self-reported errors. This study aims to provide a comprehensive understanding of gender disparities and identify opportunities for targeted support and training for caregivers over 65. In this context, it explores how gender influences the role of informal caregivers in this age group, considering both the traditional expectation that women may be more prepared for caregiving due to social norms and life experiences and the increasing involvement of men as a result of longer life expectancy and evolving social roles.
2. Materials and Methods
This cross-sectional study employed a semi-structured interview conducted between June 2023 and September 2024, completed by informal caregivers over 65 years old with at least one year of experience, caring for dependent older patients with chronic conditions. The study was conducted in the Valencian Community, Spain, and included caregivers living in urban areas with populations ranging from 10,000 to 300,000 inhabitants.
2.1. Definitions
In this study, a medication error was defined as an event related to the use of medication at home by an informal caregiver that involved violations of treatment prescriptions (e.g., incorrect medication dosage, timing, or way of administration) and had the potential to result in adverse health outcomes for the recipient, such as medication inefficacy, side effects, or serious complications. These incidents may require adjustments in the ongoing medication, close recipient monitoring, or in more severe cases, medical intervention or hospitalization or may produce lasting adverse health effects in the patient.
An informal caregiver is described by BetterCare, a European Network focused on enhancing safety caregiving at home, funded by COST (European Cooperation in Science and Technology, Brussels, Belgium), as an individual who provides care at home to patients with chronic illnesses, disabilities, or other long-term health or care needs, without having formal qualifications or academic training as a healthcare professional. These caregivers can be family members or close friends offering support within the context of a personal relationship but can also include individuals who are not personally related to the care recipients. This kind of care can be either paid or unpaid. Qualified caregivers are those who have received a specific qualification or training for 20 h or more, whose content is centered on strategies or knowledge related to caring for patients.
Informal caregiver burden refers to the stress and strain experienced by individuals providing care to a dependent person, often leading to emotional exhaustion, role strain, and a reduced quality of life [14].
The level of intrinsic motivation in caregiving tasks is defined as the caregiver’s perceived ability to effectively manage medication and care responsibilities.
2.2. Participants
In this study, the informal caregivers (over 65 years old) were individuals providing home-based care, including unpaid caregivers (primarily relatives of the recipient or personnel from non-profit associations) and paid caregivers, who were typically relatives or untrained personnel (e.g., immigrants) who were compensated for their caregiving work through the official subsidies received by the care recipients.
The participants were recruited through two main approaches. First, caregiver associations, chronic patient associations, home care service, and public health schools that offer courses and training programs for informal caregivers sent invitation messages to their members or participants. Second, recruitment took place in primary care consultations, where chronic patients accompanied by an informal caregiver were informed about the study and given the option to participate. Inclusion criteria: informal caregivers actively providing care and administering medications to a person for at least the past year. Exclusion criteria: caregivers who did not speak Spanish and those trained as health and care workers and who provided professional medical care at home, such as visiting nurses, physiotherapists, social workers, psychologists, or other institutional workers performing medical procedures in home settings.
The sample size of 80 participants was calculated using a standard formula to determine the minimum number of participants needed to identify significant differences between the proportions of male and female informal caregivers. It was calculated considering an expected proportion of men of 30%, with a 95% confidence level and a margin of error of 10%. Semi-structured, in-person interviews were conducted until the required sample size was reached, with recruitment carried out using the snowball sampling technique. No incentives were provided to the participants for their involvement.
2.3. Materials
The interview content was developed based on the researchers’ team previous experience [15,16], a thorough review of pertinent literature, and online consultations with three experts in the fields of health psychology, pharmacy, and public health. The survey comprised 51 fixed, 5 multiple-choice, and 3 open-ended questions. The fixed and multiple-choice questions gathered information on caregiver gender, dedication, training, years of experience, use of external aids for medication management, and the level of dependency assigned to the patient, along with whether the patient was entitled to official subsidies to cover the caregiving expenses, among other details. The open-ended questions allowed caregivers to report any issues related to medication, care, or aids during the interview.
The characterization of medication errors and their number, acknowledged by the caregivers in the last six months, was evaluated as the performance level. The degree of recipient dependence, the caregiver’s motivation to provide care, and the emotional burden associated with caregiving were considered factors influencing the interpretation of the results. Additionally, the study took into account whether the caregiver received any governmental support for their caregiving role. The variables included in the study and their operational definitions are provided in Table 1.
The level of dependency assigned through an assessment by technicians from the Spanish public social protection system was provided by the caregiver themselves. Furthermore, the Barthel scale was used to determine the recipient’s level of dependency [17] in performing basic activities of daily living, assigning a score based on the level of assistance required, ranging from total independence to complete dependence. Also, the interview explored caregivers’ skills and knowledge [18], relevant concepts regarding medication and care, such as their perception of a spontaneous adverse event inception [19], or medication prescriptions accomplishment [20]. The degree of intrinsic motivation in caregiving tasks was assessed using a single-item scale ranging from 0 to 10, where 0 indicated “not motivated at all”, and 10 indicated “completely motivated”. This aspect was included considering its potential influence on caregiver burden and medication management performance [21]. Additionally, it assessed the caregivers’ emotional status and burden [22], using the Zarit scale [23]. The original 22-item Zarit version has a high internal consistency (Cronbach’s alpha ≥ 0.80) and has been adapted into several shorter versions, including a 12-item (ZBI-12) and a 7-item (ZBI-7) versions, while maintaining good reliability and validity [24,25]. These versions have been validated in various languages and cultural contexts, including the Spanish ones. In this study, to minimize respondent fatigue, we opted for the ZBI-7 version, whose items also better aligned with the objectives of our research. Each item of the 7-item (ZBI-7) version was rated on a 5-point Likert scale ranging from 0 (never) to 4 (almost always), resulting in total scores between 0 and 28. The scores on the Zarit scale were considered to split the sample according to the self-reported burden and associate the latter to gender. Caregivers were considered to have a burden when they scored higher than 14 on the shortened Zarit scale. This cutoff point was established considering the cutoff criteria of the widely used 22-item Zarit version, where a score of 47 indicates moderate to severe burden. Based on this reference, we calculated a proportional cutoff for the 7-item version, classifying caregivers with scores above 14 as experiencing some degree of burden (moderate or severe).
To collect the responses, an online platform was developed, allowing the participants to access it freely and anonymously at any time after receiving an invitation. The platform was accessible from any internet-connected device and included safeguards to prevent multiple responses from the same device IP address. However, no cookies were used.
2.4. Procedure
The participants were invited to take part in the study through an official invitation letter, ensuring confidentiality and anonymity. Those who agreed attended an informative session where they received details about the study and the participation process. The participants could choose between two response methods. A small number opted to complete the questionnaire independently from home using an online platform accessed through a provided link. However, the majority preferred assistance in completing the questionnaire. In this case, three trained psychologists guided them through the process using a paper-and-pencil format. Once completed, the psychologists manually transferred the responses to the digital database on behalf of the participants.
Assisted interviews were conducted within the premises of the participating institutions under conditions of confidentiality. The psychologists, who were experienced in conducting semi-structured interviews, were not affiliated with the associations, institutions, and centers where the participants received healthcare or social assistance. Both those who chose to respond independently and those who requested assistance answered the same set of questions, ensuring consistency across all responses. This approach ensured data accuracy, minimized potential response biases, and provided support to the participants who preferred assistance in answering the survey.
2.5. Statistical Analysis
First, missing data within the dataset were addressed by excluding incomplete records. Caregivers who did not respond to at least 80% of the interview questions were excluded. Participants’ wishes to withhold their demographic data to ensure anonymity were respected. After data curation, quantitative results were expressed using descriptive statistics. Descriptive analyses were conducted both globally and stratified by gender to compare outcomes between men and women. Absolute and relative frequencies were calculated for each relevant variable. Caregiver burden was assessed using the ZBI-7 score, both as a continuous variable and as a categorical variable. For categorical analysis, the participants were classified into two groups based on whether they experienced a burden (ZBI-7 score > 14) or not. Caregivers were considered inexperienced if they had less than two years of caregiving experience, while those with two or more years were classified as experienced.
Bivariate statistics were employed to explore relationships between gender and other key variables, including overall burden, motivation, and caregiver training levels and experience. Fisher’s exact test was applied for categorical variables when subgroups had very small sample sizes, while the chi-square test was used for larger categorical comparisons. The Mann–Whitney U test was employed for non-parametric continuous variables, as these did not follow a normal distribution. To evaluate the association between gender and error frequency, relative risk (RR) and absolute risk difference (excess risk) were calculated as measures of association, comparing male and female caregivers within each experience group. A logistic regression analysis was performed to explore the factors influencing caregiver burden, using variables such as education, experience, gender, relationship to the care recipient, and others as independent variables. A separate logistic regression analysis was conducted using the same method to identify factors associated with medication errors, aiming to determine variables linked to better performance and reduced likelihood of errors. For the logistic regression models, predictor variables were selected based on their theoretical relevance and potential influence on the dependent variables, as identified in previous literature and caregiving research. Additionally, variables were included if they demonstrated significant associations in preliminary analyses or were considered key factors in understanding caregiving burden and medication management. Interaction terms were incorporated when prior theoretical rationale suggested that the effect of one predictor might depend on the level of another (e.g., motivation × training). This approach allowed us to explore potential associations and assess the relative influence of each predictor on the outcome, while ensuring that the model included clinically and contextually meaningful variables. Statistical significance was defined as a p-value of less than 0.05.
3. Results
Eighty-two participants responded to the survey. Two subjects were excluded due to missing data in more than 80% of the fields, which resulted in a final sample of 80 carers. Among them, 23 (28.8%) were male, with a mean age of 69.7 years (SD 5.6; Table 2).
3.1. Relationship with the Recipient of Care
In this sample, fewer men (8.7%) than women (17.5%) were hired as caregivers, although the difference was not statistically significant (p-value = 0.259). For most male caregivers, caregiving was their main activity (69.6%), similar to what observed for female caregivers (Table 2). A higher proportion of men (87.0%) than of women (77.2%) lived with the care recipient, but this difference was also not statistically significant (p-value = 0.376). Additionally, fewer men (8.7%) than women (17.5%) received payment for their caregiving work, with no significant difference observed (p-value = 0.259).
3.2. Training Received to Be a Caregiver
Male caregivers had received similar levels of training as female caregivers (p-value = 0.505). However, more male caregivers (87.0%) had no training compared to the female caregivers (75.4%; Table 2). Male caregivers also had significantly fewer years of experience than their female counterparts (3.1 years, SD = 5.9 vs. 10.1 years, SD = 13.0; p-value = 0.004), indicating that men typically begin caregiving later in life (Table 1).
3.3. Motivation to Assume the Role of Informal Caregiver at Home
When assessing the motivation to take on the role of informal caregiver at home, men appeared more motivated than women, with scores of 5.5 (SD = 4.1) and 4.4 (SD = 3.7) out of 10, respectively (Table 2). However, this difference was not statistically significant (p-value = 0.239).
3.4. Caregiver’s Overall Burden
Regarding the caregiver’s overall burden associated with caregiving responsibilities, we can state that females experienced significantly higher levels of burden compared to males, as reflected in their Zarit scores (Table 3). Female caregivers reported feeling significantly more overwhelmed than men when trying to balance their caregiving responsibilities with other commitments, such as work and family (p-value = 0.003). They also felt that their health had worsened due to the caregiving responsibilities more than men (p-value = 0.001) and experienced greater tension when being with the person they cared for compared to men (p-value = 0.028). Additionally, female caregivers reported feeling that they had lost control of their lives since taking on the caregiving role more than men (p-value = 0.006) and perceived their caregiving role as more of a “burden” compared to male caregivers (p-value = 0.003). Additionally, 39.2% of male caregivers reported not feeling fatigued with their work, compared to 7.0% of female caregivers (p-value = 0.003) (Table 3). This was further supported by the fact that 44 (77.2%) female caregivers experienced burden due to their caregiving work (ZBI-7 score > 14 points), compared to 11 (47.8%) male caregivers.
3.5. Factors Influencing Caregiver Burden
Table 4 presents the results of a logistic regression analysis examining the factors associated with the likelihood of experiencing caregiver burden. Being female was significantly associated with an increased probability of burden, with women having more than six times the odds of experiencing caregiver burden compared to men (OR = 6.257, p = 0.006). Furthermore, caregivers who had received training showed substantially lower odds of reporting burden (OR = 0.196, p = 0.005), suggesting a protective effect of caregiver education. Motivation to provide care also emerged as a significant protective factor, with higher motivation associated with lower odds of experiencing burden (OR = 0.638, p = 0.009). Notably, a significant interaction was found between training and motivation (OR = 1.243, p = 0.039), indicating that the beneficial effect of training was moderated by the caregiver’s level of motivation. Specifically, the protective effect of training was strongest among caregivers with lower motivation and diminished as motivation increased. Other variables, such as salary, daily caregiving hours, and living with the care recipient, did not show statistically significant associations with caregiver burden in this model.
3.6. Impact of Motivation on Error Likehood
The factors influencing the probability of errors were analyzed using logistic regression, revealing that motivation was the only variable with a significant impact on the likelihood of errors in caregiving (Table 5).
The results show that an increase in motivation significantly reduced the probability of making an error. The motivation coefficient was −0.179 (p-value = 0.021), indicating that for each additional point in motivation, the probability of making an error decreased by 19.6% (odds ratio = 1.196, 95% CI 1.033–1.406). These findings suggest that higher motivation is associated with a lower risk of making errors, which could have important implications for improving performance and reducing errors among informal caregivers.
3.7. Level of Performance
Nine male caregivers (39.1%) and nineteen female caregivers (33.3%) acknowledged making a medication or caregiving error in the past six months (Table 6). The rates of acknowledged errors committed in the last 6 months among male and female caregivers did not significantly differ (p-value = 0.816).
When considering caregivers with less experience, men showed a 16.2% higher absolute risk of error compared to women without experience (Table 6). However, the 95% confidence interval for this difference included the null value, indicating that the difference was not statistically significant.
3.8. Type of Reported Errors
A total of 54 errors were reported, with 24.1% self-attributed by male caregivers and 75.9% by female caregivers (Table 7). The most frequently reported medication error was omission (13.8%), followed by timing errors (12.5%). Under-dosing occurred in 6.3% of the cases, while confusion (5.0%) and over-dosing (2.5%) were less common. The differences between male and female caregivers in medication errors were not statistically significant. In turn, the most common caregiving error was back injuries sustained during improper transfers or movements of the care recipient (11.3%). Other reported errors included forgetting dietary requirements (7.5%), allowing for falls during bathing (6.3%), and failing to achieve the appropriate food texture (2.5%). Gender differences in caregiving errors were also not statistically significant.
4. Discussion
The profile of older male caregivers assuming home caregiving roles has received limited attention in the literature, primarily due to the traditional association of caregiving with women, shaped by entrenched societal and cultural gender biases [8]. This study examined the demographic characteristics, caregiving roles, and the emotional and physical burdens of male and female caregivers 65 years old and over.
While the initial assumption that inexperienced men over 65 may be less equipped to handle the demands of caregiving compared to women in the same age group is not definitively supported due to the small sample size, the observed data suggest a possible trend in this direction. This trend is further supported by the lack of significant differences in performance among experienced caregivers, indicating that with time and practice, gender-related disparities in caregiving may decrease. This suggests that the observation made in this study is worth being explored in more detail, despite the challenges of enrolling male caregivers who provide care for their partners.
While both groups share common challenges, the results suggest gender differences in several aspects of caregiving, particularly in experience level, emotional burden, and self-care time. The findings indicate that male caregivers often begin caregiving later in life and report a lower emotional burden. In contrast, female caregivers appear to face greater physical and emotional challenges, which may highlight the need for targeted interventions. Despite these differences, caregiving performance, measured by errors, appeared comparable across genders.
4.1. Gender Differences in Caregiving Experience and Emotional Burden
The findings of this study indicate that men over the age of 65 who take on the role of informal caregivers often have less experience with domestic caregiving tasks compared to women in similar roles, as previous reported [1,8]. This aligns with recent publications that describe how men typically begin caregiving later in life, usually for a close relative and often without receiving any income or financial compensation [26]. This late entry into caregiving reflects societal norms that traditionally exclude men from domestic responsibilities. In contrast, women often assume caregiving roles earlier in life, which leads to cumulative emotional and physical demands [4,27,28]. Our results indicate that being female is associated with approximately a fivefold increase in the odds of experiencing caregiver burden compared to being male. This trend may reflect the greater caregiving demands typically placed on women, possibly influenced by societal expectations regarding caregiving as a traditionally female role [8]. These findings align with the existing literature on caregiver burden [26,27,28,29].
In this study, the Zarit scale results further emphasize these disparities, with women reporting significantly higher levels of emotional exhaustion, fatigue, and perceived loss of control over their lives. These findings align with previous studies showing that women are more prone to depressive symptoms, sleep disruption, and feelings of being overwhelmed due to caregiving responsibilities [11,29]. Female caregivers with male recipients reported even higher levels of distress, exacerbated by societal pressures and caregiving expectations [4,8]. These outcomes suggest that female caregivers may experience a dual strain: first, from the caregiving tasks themselves, and second, from societal expectations related to the caregiving roles. Interestingly, male caregivers reported lower emotional distress, which may be attributable to differing coping strategies or societal expectations that prioritize their self-care [11,29,30]. Nevertheless, it should also be considered that this trend has been recently reported in the literature, where Schaffler-Schaden and colleagues have linked the burden scale (BSFC-s) with the number of years dedicated to caregiving [31].
4.2. Caregiving Performance—Motivation and Training as Protective Factors
Despite these gender differences, caregiving performance, measured by self-reported errors, did not differ significantly between men and women. This suggests that women, despite their heavier emotional burden, maintain similar levels of performance to those of men. Technology, in the future of home care, could help women to alleviate their emotional burden, given the multidimensionality and complexity of home care as well as the challenges and strains involved [32]. The data in the logistic regression model suggested that motivation and/or formal training may play a protective role in reducing caregiver burden. The data show that higher motivation was associated with a lower risk of making errors, suggesting that motivated caregivers are better equipped to manage the complexities of caregiving; these results are aligned with previous published work [33]. Additionally, the duration of caregiving plays a key role, as longer caregiving periods are often associated with increased strain but can also reinforce coping strategies and caregiving skills over time [34]. Expectations regarding the caregiving roles serve as a key mediator between the demands of caregiving and the outcomes, such as informal caregiver burnout [29,35]. Formal training also emerged as a significant factor in alleviating caregiver burden. Caregivers who completed more than 20 h of training were significantly less likely to report experiencing burden. Training may provide caregivers with essential skills and knowledge, potentially increasing their confidence and reducing the perceived challenges of caregiving. This observation aligns with previous research, highlighting the importance of structured training program [33].
While male caregivers generally have less experience and are less likely to seek formal training, these programs could be particularly beneficial for them, helping to bridge gaps in their preparedness and ensuring better caregiving practices. For female caregivers, who often face greater cumulative emotional and physical demands, training could serve as a critical buffer, providing strategies to manage stress and caregiving tasks more effectively. It is important to consider that, compared to previous studies, younger male caregivers are more likely to admit to a medication error within the past six months [36]. These findings highlight the necessity of accessible and structured training initiatives to support caregivers and improve caregiving outcomes in both genders.
4.3. Familial Roles and Compensation
This study also found that older caregivers, regardless of their gender, were primarily relatives of the care recipient, with men most commonly caring for their spouses [28]. This reflects the strong familial nature of caregiving for older male adult carers. This hypothesis is further supported by the fact that fewer male carers reported receiving financial compensation compared to women, highlighting potential inequities in how caregiving is valued within families and society [4,28]. This disparity suggests the need for policies that recognize and support informal caregiving roles, regardless of gender, to reduce the financial and emotional strain.
4.4. Practical Implications
It is important to be vigilant when an older man assumes caregiving responsibilities, as he may be unfamiliar with basic caregiving standards or practices. There is also a higher likelihood that he will not seek training or education, potentially due to perceiving it as inappropriate or viewing caregiving as a “women’s task”, which can act as a barrier that must be considered. Support strategies to address the emotional burden should be differentiated, as women in caregiving roles often require greater and sooner attention in this regard than men. The results from this study suggest that caregiver training may help reduce this burden. Expanding accessible training programs with a focus on practical skills, stress management, and caregiving confidence could be beneficial for improving caregiver well-being. Future research should confirm the challenges faced by and the training needs of caregivers according to gender, and then it will be worth exploring gender-specific training. This could be tailored to address the potential challenges faced by female caregivers and bridge equity gaps. Healthcare professionals must address the risks of errors in home care, including medication management, by providing clear instructions to informal caregivers. Additionally, promoting shared caregiving responsibilities within families could help distribute the burden more equitably, reducing the disproportionate demands placed on women.
4.5. Limitations
This study has several limitations. First, the snowball sampling method is a non-probability technique, meaning that the sample was not randomly selected and is unlikely to be representative of the broader population of informal caregivers. As a result, the findings should be interpreted with caution, as they have limited generalizability. Second, the cross-sectional design restricts our ability to draw causal inferences about the observed associations between caregiving factors and outcomes. Third, some key variables were measured using single-item questions rather than validated multi-item scales. This may limit the reliability and validity of the measures and warrants careful interpretation. Fourth, information related to education, social beliefs, or similar contextual factors was not collected, in full respect of the participants’ privacy and in accordance with the principles of voluntary and anonymous participation. Additionally, the sampling method may have introduced an unintentional selection bias, potentially overrepresenting certain caregiver profiles (such as middle-aged women in family settings) while underrepresenting others, such as older male caregivers. Finally, this study should be considered an initial exploration, constrained by the challenges of reaching underrepresented caregiving populations.
4.6. Future Directions
Although extensive research exists on caregiving, significant gaps remain in understanding why some individuals take on caregiving roles more actively than others, how they navigate these responsibilities, and the long-term consequences of caregiving. The safety of the care recipients under the care of unqualified and untrained informal caregivers has received little attention, despite its significant impact on the well-being of both the recipient and the caregiver, as well as on healthcare resource utilization. Gaining insight into these dynamics is essential for designing effective policies and interventions that address the multifaceted challenges of caregiving, particularly for women, who often endure compounded emotional and physical strains [37,38].
Additionally, the preliminary trends observed in this study, suggesting possible gender differences in the capacity to adapt to the caregiving roles, underscore the need for further research. Given the difficulty in enrolling male caregivers who provide care to their partners, targeted efforts to better understand their experiences are needed. This could inform the development of gender-sensitive support programs aimed at reducing disparities in caregiving outcomes and improving the overall quality of informal care.
Future research should prioritize exploring the longitudinal effects of caregiving, with a specific focus on the impact of training and support systems. Additionally, investigating how societal and cultural norms shape the caregiving dynamics can provide a valuable context for addressing inequities and improving caregiver outcomes. Expanding this research to include more diverse and larger samples would offer a broader and more nuanced understanding of caregiving challenges and opportunities, ultimately guiding the development of targeted and inclusive interventions.
5. Conclusions
In this study, significant gender differences in older informal caregiving were identified, particularly in experience levels, emotional burden, and time for self-care. Male caregivers over 65 years old tend to start caregiving later in life and reported lower emotional burden, whereas female caregivers appeared to face substantial physical and emotional challenges, including a fivefold greater likelihood of experiencing caregiver burden. Despite these differences, caregiving performance, measured by self-reported errors, remained comparable across genders.
These findings underscore the critical role of formal training as a modifiable factor to reduce caregiver burden. Trained caregivers demonstrated significantly lower odds of experiencing burden, highlighting the need to prioritize the implementation of comprehensive training programs. Such programs could be particularly beneficial for male caregivers, bridging gaps in experience and preparedness, while also serving as a buffer for female caregivers, who often face cumulative emotional and physical strain.
Future efforts should focus on developing gender-sensitive support systems that address the unique challenges faced by male and female caregivers. Tailored interventions, such as psychological counseling, respite care, and skill-based training programs, could alleviate the emotional burden on women while improving caregiving confidence and competence among men.
By addressing these disparities, it will be possible to foster equity in caregiving roles and enhance the quality of care for dependent individuals. These efforts are essential to adapt to the shifting societal expectations and demographic trends, including increasing male participation in caregiving roles as life expectancy continues to rise.
Conceptualization, J.J.M., M.G. and P.B.; formal analysis, C.P.-E.; data curation, C.P.-E.; writing—original draft preparation, P.B.; writing—review and editing, E.G.-H., A.S.-G. and M.G.; supervision, J.J.M.; funding acquisition, J.J.M. and P.B. All authors have read and agreed to the published version of the manuscript.
The present study protocol underwent the revision and approval of the Sant Joan Hospital Ethics Committee Board, obtaining approval in December 2021 (21/063). The study was registered in Clinical Trial as NCT05247801.
All participants signed an informed consent before participating in the study.
All data from this study will be openly accessible upon reasonable request.
We would like to acknowledge the effort, work, and interest of the associations sense barreres, vivir sin soledad and AFA Parkinson de Alicante, among others, who supported us and showed interest in the project from the beginning.
The authors declare the absence of any conflicts of interest.
Footnotes
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content.
Variable definitions.
Variable | Definition |
---|---|
Informal caregiver’s overall burden | Overall burden experienced by an informal caregiver due to caregiving responsibilities, measured using the 7-item Zarit Burden Scale (ZBI-7). |
Motivation | Self-perceived motivation to achieve good caregiving outcomes, measured through agreement with the statement “Do you feel motivated for what you do to have a good result?” using a Likert-type scale. |
Caregiving as the main activity | Whether caregiving is the caregiver’s main daily occupation, recorded as yes or no. |
Salary | Indicates whether the caregiver is financially compensated for caregiving, categorized as yes, no, or prefers not to answer. |
Training as a caregiver | Formal training received related to caregiving tasks, categorized as none or yes (1–20 h). |
Recipient’s place of residence | Geographic classification based on population size, categorized as large city (>100,000), medium city (10,000–100,000), or small city (<10,000). |
Caregiver’s use of a pillbox | Whether a pillbox is used to manage medications, recorded as yes or no. |
Recipient government assistance | Whether the recipient receives official assistance after formal assessment, recorded as yes or no. |
Error awareness | Whether the caregiver reports having made caregiving- or medication-related mistakes in the last six months, recorded as yes or no. |
Medication errors | Specific mistakes made in administering medications, categorized with multiple response options: under-dosing, over-dosing, omission, timing, confusion. |
Caregiving errors | Specific caregiving-related mistakes committed by the caregiver, categorized with multiple response options: dietary error, food texture error, bathing fall, or transfer injury. |
Sample.
Total | Male Carers | Female Carers | ||
---|---|---|---|---|
N (%) | N (%) | N (%) | p-Value * | |
Gender of the carer | 80 (100) | 23 (28.8) | 57 (71.2) | <0.001 |
Age of the carer (M, SD) | 69.2 (SD 5.9) | 69.7 (SD 5.6) | 69.0 (SD 6.1) | 0.659 |
Caregiving as the main activity | ||||
Yes | 57 (71.3) | 16 (69.6) | 41 (71.9) | 1.000 |
No | 23 (28.8) | 7 (30.4) | 16 (28.1) | |
Training as a caregiver | ||||
None | 63 (78.8) | 20 (87.0) | 43 (75.4) | 0.368 |
1–20 h | 17 (21.3) | 3 (13.0) | 14 (24.6) | |
Relative of the recipient | ||||
Yes | 73 (91.3) | 22 (95.7) | 51 (89.5) | 0.667 |
No | 7 (8.8) | 1 (4.3) | 6 (10.5) | |
Carer relationship to the recipient | ||||
Spouse | 57 (78.1) | 20 (90.9) | 37 (72.5) | 0.149 |
Child | 9 (12.3) | 2 (9.1) | 7 (13.7) | |
Other | 7 (9.6) | 0 (0.0) | 7 (13.7) | |
Number of recipients being cared for | ||||
One | 78 (97.5) | 23 (100) | 55 (96.5) | 0.204 |
Two or more | 2 (2.5) | 0 (0.0) | 2 (3.5) | |
Salary for caregiving work | ||||
Yes | 12 (15.0) | 2 (8.7) | 10 (17.5) | 0.259 |
No | 67 (83.8) | 20 (87.0) | 47 (82.5) | |
Prefers not to answer | 1 (1.3) | 1 (4.3) | 0 (0.0) | |
Main carer language | ||||
Spanish | 78 (97.5) | 22 (95.7) | 56 (98.2) | 0.495 |
Other | 2 (2.5) | 1 (4.3) | 1 (1.8) | |
Gender of the recipient | ||||
Male | 46 (57.5) | 2 (8.7) | 44 (77.2) | <0.001 |
Female | 34 (42.5) | 21 (91.3) | 13 (22.8) | |
Age of the recipient (M, SD) | 73.5 (SD 14.9) | 71.6 (SD 13.3) | 74.3 (15.6) | 0.101 |
Recipient main diagnosis | ||||
Parkinson’s disease | 18 (22.5) | 6 (26.1) | 12 (21.1) | 0.936 |
Alzheimer’s disease | 9 (11.3) | 2 (8.7) | 7 (12.3) | |
Cardiovascular disease | 9 (11.3) | 4 (17.4) | 5 (8.8) | |
Cancer | 7 (8.8) | 1 (4.3) | 6 (10.5) | |
Diabetes | 6 (7.5) | 2 (8.7) | 4 (7.0) | |
Heart failure | 4 (5.0) | 1 (4.3) | 3 (5.3) | |
Reduced mobility | 3 (3.8) | 1 (4.3) | 2 (3.5) | |
Other | 24 (30.0) | 6 (26.1) | 18 (31.6) | |
Recipient’s place of residence | ||||
Big city (>100,000 inhab.) | 47 (58.8) | 15 (65.2) | 32 (56.1) | 0.329 |
Medium city | 26 (32.5) | 5 (21.7) | 21 (36.8) | |
Small city | 7 (8.8) | 3 (13.0) | 4 (7.0) | |
Recipients’ ongoing medication per day (M, SD) | 8.5 (4.3) | 8.1 (3.8) | 8.7 (4.5) | 0.906 |
Caregivers’ use of a pillbox | ||||
Yes | 40 (50.0) | 7 (30.4) | 33 (57.9) | 0.048 |
No | 40 (50.0) | 16 (69.6) | 24 (42.1) | |
The recipient is receiving government assistance following a formal technical assessment | ||||
Yes | 40 (50.0) | 11 (47.8) | 29 (50.9) | 1.000 |
No | 40 (50.0) | 12 (52.2) | 28 (49.1) | |
Residence with care recipient | ||||
Yes | 64 (80.0) | 20 (87.0) | 44 (77.2) | 0.376 |
No | 16 (20.0) | 3 (13.0) | 13 (22.8) | |
Years of experience as a caregiver (M, SD) | 8.1 (SD 11.8) | 3.1 (SD 5.9) | 10.1 (SD 13.0) | 0.004 |
Daily caregiving hours (M, SD) | 16.2 (SD 8.8) | 14.5 (SD 10.1) | 16.9 (8.3) | 0.287 |
Motivation | 4.8 (SD 3.8) | 5.5 (SD 4.1) | 4.4 (SD 3.7) | 0.239 |
* Chi-square test, Fisher’s exact test, and Mann–Whitney U test were used appropriately according to the type of data.
Informal caregiver’s overall burden measured by Zarit scale (ZBI-7).
Total | Male Carers | Female Carers | |||||
---|---|---|---|---|---|---|---|
Mean | SD | Mean | SD | Mean | SD | p-Value * | |
Do you feel that, due to the time you dedicate to caregiving, you do not have enough time for yourself? | 3.3 | 1.3 | 2.8 | 1.2 | 3.5 | 1.3 | 0.056 |
Do you feel overwhelmed when trying to balance your caregiving responsibilities with other commitments (work, family)? | 2.9 | 1.2 | 2.2 | 1.2 | 3.1 | 1.1 | 0.003 |
Do you think that caregiving has negatively affected your relationship with other family members? | 2.3 | 1.3 | 2.0 | 1.1 | 2.4 | 1.3 | 0.181 |
Do you feel that your health has worsened due to your caregiving responsibilities? | 2.6 | 1.3 | 1.8 | 1.0 | 3.0 | 1.2 | <0.001 |
Do you feel tense when you are around the person you care for? | 2.1 | 1.2 | 1.6 | 0.8 | 2.3 | 1.3 | 0.028 |
Do you feel like you have lost control of your life since you started your caregiving role? | 2.5 | 1.3 | 1.9 | 0.9 | 2.8 | 1.3 | 0.006 |
Overall, do you feel that your caregiving role is a “burden”? | 2.4 | 1.2 | 1.8 | 0.8 | 2.7 | 1.3 | 0.003 |
Overall score (ZBI-7) | 18.4 | 6.6 | 14.1 | 5.0 | 19.8 | 6.8 | <0.001 |
* Mann–Whitney U test.
Factors contributing to increased burden among informal caregivers.
Factors | β Estimate | Std. Error | p-Value | OR | 95% CI Lower | 95% CI Upper |
---|---|---|---|---|---|---|
(Intercept) | 4.232 | 1.644 | 0.010 | 68.854 | 3.485 | 2415.902 |
Caregiver gender | 1.834 | 0.669 | 0.006 | 6.257 | 1.786 | 25.538 |
Relative of the recipient | 0.558 | 1.034 | 0.589 | 1.747 | 0.256 | 16.926 |
Salary | −1.627 | 0.581 | 0.005 | 0.196 | 0.053 | 0.557 |
Training as a caregiver | −0.061 | 0.039 | 0.120 | 0.940 | 0.867 | 1.013 |
Years of experience | −0.634 | 1.042 | 0.537 | 0.526 | 0.056 | 3.856 |
Daily caregiving hours | 4.232 | 1.644 | 0.010 | 68.854 | 3.485 | 2415.902 |
Residence with care recipient | 1.834 | 0.669 | 0.006 | 6.257 | 1.786 | 25.538 |
Motivation | −0.449 | 0.171 | 0.009 | 0.638 | 0.439 | 0.870 |
Training and Motivation | 0.217 | 0.105 | 0.039 | 1.243 | 1.039 | 1.601 |
Factors contributing to an increased probability of making errors.
Factors | β Estimate | Std. Error | p-Value | OR | 95% CI Lower | 95% CI Upper |
---|---|---|---|---|---|---|
(Intercept) | −5.243 | 4.056 | 0.196 | 0.005 | 0.000 | 12.393 |
Caregiver gender | −0.043 | 0.642 | 0.946 | 0.958 | 0.273 | 3.474 |
Caregiver age | 0.074 | 0.049 | 0.135 | 1.077 | 0.979 | 1.190 |
Training as a caregiver | −0.040 | 0.330 | 0.904 | 0.961 | 0.485 | 1.821 |
Years of experience | −0.005 | 0.031 | 0.880 | 0.995 | 0.931 | 1.053 |
Salary | −0.914 | 0.753 | 0.225 | 0.401 | 0.086 | 1.739 |
Motivation | −0.179 | 0.078 | 0.021 | 1.196 | 1.033 | 1.406 |
Informal caregiver’s overall burden | 0.008 | 0.042 | 0.854 | 1.008 | 0.927 | 1.097 |
Daily caregiving hours | −0.017 | 0.033 | 0.610 | 0.983 | 0.920 | 1.050 |
Residence with care | 0.504 | 0.827 | 0.543 | 1.655 | 0.322 | 8.683 |
Error frequency by caregiver experience and gender.
Reported Errors | Inexperienced Male | Inexperience Female | Experienced Male | Experienced Female |
---|---|---|---|---|
N (%) | N (%) | N (%) | N (%) | |
No | 8 (61.5) | 14 (77.8) | 6 (60.0) | 24 (61.5) |
Yes | 5 (38.5) | 4 (22.2) | 4 (40.0) | 15 (38.5) |
Total | 13 (100) | 18 (100) | 10 (100) | 39 (100) |
Relative Risk (RR) | 1.73 (95% CI 0.57 to 5.22) | 1.04 (95% CI 0.44 to 2.45) | ||
Excess Risk | 0.162 (95% CI −0.164 to 0.489) | 0.015 (95% CI −0.324 to 0.355) |
Inexperienced caregivers had been providing care for less than two years.
Self-performance declared by carers and type of errors committed by caregivers.
Total | Male Carers | Female Carers | |||
---|---|---|---|---|---|
N (%) | N (%) | N (%) | p-Value * | ||
Are you aware of having made any mistakes (either in medication or in caregiving) | |||||
Yes | 28 (35.0) | 9 (39.1) | 19 (33.3) | ||
No | 52 (65.0) | 14 (60.9) | 38 (66.7) | 0.816 | |
TOTAL | 80 (100) | 23 (100) | 57 (100) | ||
MEDICATION ERRORS | Under-dosing: Giving a lower dose than that prescribed to the person | 5 (6.3) | 2 (8.7) | 3 (5.3) | 0.584 |
Over-dosing: Giving a higher dose than that prescribed to the person | 2 (2.5) | 0 (0.0) | 2 (3.5) | 1.000 | |
Omission: Forgetting to administer a dose that was prescribed to the person | 11 (13.8) | 3 (13.0) | 8 (14.0) | 1.000 | |
Timing: Not following the regular schedule for taking medication | 10 (12.5) | 3 (13.0) | 7 (12.3) | 0.689 | |
Confusion: Administering the wrong medication due to confusion | 4 (5.0) | 1 (4.3) | 3 (5.3) | 1.000 | |
CAREGIVING ERRORS | Forgetting dietary requirements when cooking (e.g., forgetting that the diet was low in salt or low in fats or an allergy to a certain food) | 6 (7.5) | 2 (8.7) | 4 (7.0) | 0.623 |
Failing to achieve the appropriate texture in the food that had to be given to the person under care | 2 (2.5) | 1 (4.3) | 1 (1.8) | 0.427 | |
Allowing the person cared for to trip and fall during a shower or bath due to not using the proper support or shower chair | 5 (6.3) | 0 (0.0) | 5 (8.8) | 0.321 | |
Injuring your back while making a wrong move during a transfer or movement of the person cared for | 9 (11.3) | 1 (4.3) | 8 (14.0) | 0.428 | |
TOTAL | 54 (100) | 13 (24.1) | 41 (75.9) |
* Fisher’s exact test.
1. Sanjuán-Quiles, Á.; Alcañiz-Garrán Mdel, M.; Montejano-Lozoya, R.; Ramos-Pichardo, J.D.; García-Sanjuán, S. La perspectiva de las personas cuidadoras desde un análisis de género. Rev. Esp. Salud Pública; 2023; 97, e202307062.
2. Kolip, P.; Lange, C. Gender inequality and the gender gap in life expectancy in the European Union. Eur. J. Public Health; 2018; 28, pp. 869-872. [DOI: https://dx.doi.org/10.1093/eurpub/cky076] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/29767703]
3. Ribeiro, O.; Paúl, C.; Nogueira, C. Real men, real husbands: Caregiving and masculinities in later life. J. Aging Stud.; 2007; 21, pp. 302-313. [DOI: https://dx.doi.org/10.1016/j.jaging.2007.05.005]
4. Comer, A.; Roeder, H.; Jones, A.; Jawed, A.; Kramer, N. The impact of sex and gender on burden for caregivers of stroke patients: A narrative review. J. Stroke Cerebrovasc. Dis.; 2024; 33, 107854. [DOI: https://dx.doi.org/10.1016/j.jstrokecerebrovasdis.2024.107854]
5. Baker, K.L.; Robertson, N. Coping with caring for someone with dementia: Reviewing the literature about men. Aging Ment. Health; 2008; 12, pp. 413-422. [DOI: https://dx.doi.org/10.1080/13607860802224250] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/18791888]
6. Pinquart, M.; Sörensen, S. Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. J. Gerontol. Ser. B Psychol. Sci. Soc. Sci.; 2006; 61, pp. P33-P45. [DOI: https://dx.doi.org/10.1093/geronb/61.1.P33]
7. Navaie-Waliser, M.; Spriggs, A.; Feldman, P.H. Informal caregiving: Differential experiences by gender. Med. Care; 2002; 40, pp. 1249-1259. [DOI: https://dx.doi.org/10.1097/00005650-200212000-00012]
8. Li, W.; Manuel, D.G.; Isenberg, S.R.; Tanuseputro, P. Caring for older men and women: Whose caregivers are more distressed? A population-based retrospective cohort study. BMC Geriatr.; 2022; 22, 890. [DOI: https://dx.doi.org/10.1186/s12877-022-03583-6]
9. Parand, A.; Garfield, S.; Vincent, C.; Franklin, B.D. Carers’ Medication Administration Errors in the Domiciliary Setting: A Systematic Review. PLoS ONE; 2016; 11, e0167204. [DOI: https://dx.doi.org/10.1371/journal.pone.0167204]
10. Look, K.A.; Stone, J.A. Medication management activities performed by informal caregivers of older adults. Res. Soc. Adm. Pharm.; 2018; 14, pp. 418-426. [DOI: https://dx.doi.org/10.1016/j.sapharm.2017.05.005]
11. Dorin, L.; Krupa, E.; Metzing, S.; Büscher, A. Gender disparities in German home-care arrangements. Scand. J. Caring Sci.; 2016; 30, pp. 164-174. [DOI: https://dx.doi.org/10.1111/scs.12236]
12. Priyashantha, K.; De Alwis, A.C.; Welmilla, I. Gender stereotypes change outcomes: A systematic literature review. J. Humanit. Appl. Soc. Sci.; 2023; 5, pp. 450-466. [DOI: https://dx.doi.org/10.1108/JHASS-07-2021-0131]
13. Instituto Nacional de Estadística. Population Projections 2022–2072. October 2022. Available online: https://www.ine.es/en/prensa/pp_2022_2072_en.pdf (accessed on 16 March 2023).
14. Cui, P.; Yang, M.; Hu, H.; Cheng, C.; Chen, X.; Shi, J.; Li, S.; Chen, C.; Zhang, H. The impact of caregiver burden on quality of life in family caregivers of patients with advanced cancer: A moderated mediation analysis of the role of psychological distress and family resilience. BMC Public Health; 2024; 24, 817. [DOI: https://dx.doi.org/10.1186/s12889-024-18321-3] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/38491454]
15. Carrillo, I.; Guilabert, M.; Pérez-Jover, V.; Mira, J. Valoración de dos aplicaciones para la autogestión de la medicación en pacientes mayores. Estudio cualitativo. Rev. Calid. Asist.; 2015; 30, pp. 142-149. [DOI: https://dx.doi.org/10.1016/j.cali.2015.02.005]
16. Mira, J.J.; Lorenzo, S.; Guilabert, M.; Navarro, I.; Perez-Jover, V. A systematic review of patient medication error on self-administering medication at home. Expert Opin. Drug Saf.; 2015; 14, pp. 815-838. [DOI: https://dx.doi.org/10.1517/14740338.2015.1026326]
17. Fi, M. Functional evaluation: The Barthel index. Md. State Med. J.; 1965; 14, pp. 61-65.
18. Mira, J.J.; Martínez-Jimeno, L.; Orozco-Beltrán, D.; Iglesias-Alonso, F.; Lorenzo, S.; Nuño, R.; Pérez, P.; Toro, N.; Pérez-Jover, V.; Gil-Guillen, V. What older complex chronic patients need to know about their everyday medication for safe drug use. Expert Opin. Drug Saf.; 2014; 13, pp. 713-721. [DOI: https://dx.doi.org/10.1517/14740338.2014.916272]
19. Mira, J.J.; Navarro, I.M.; Guilabert, M.; Aranaz, J. Frecuencia de errores de los pacientes con su medicación. Rev. Panam. Salud Pública; 2012; 31, pp. 95-101. [DOI: https://dx.doi.org/10.1590/S1020-49892012000200001] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/22522870]
20. Orozco-Beltrán, D.; Mata-Cases, M.; Artola, S.; Conthe, P.; Mediavilla, J.; Miranda, C. Abordaje de la adherencia en diabetes mellitus tipo 2: Situación actual y propuesta de posibles soluciones. Atención Primaria; 2016; 48, pp. 406-420. [DOI: https://dx.doi.org/10.1016/j.aprim.2015.09.001]
21. Zarzycki, M.; Morrison, V. Getting back or giving back: Understanding caregiver motivations and willingness to provide informal care. Health Psychol. Behav. Med.; 2021; 9, pp. 636-661. [DOI: https://dx.doi.org/10.1080/21642850.2021.1951737]
22. Feeney, B.C.; Collins, N.L. Motivations for caregiving in adult intimate relationships: Influences on caregiving behavior and relationship functioning. Personal. Soc. Psychol. Bull.; 2003; 29, pp. 950-968. [DOI: https://dx.doi.org/10.1177/0146167203252807] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/15189615]
23. Afework, T.; Wondimagegnehu, A.; Alemayehu, N.; Kantelhardt, E.J.; Addissie, A. Validity and reliability of the Amharic version of supportive care needs survey-short form 34 among cancer patients in Ethiopia. BMC Health Serv. Res.; 2021; 21, 484. [DOI: https://dx.doi.org/10.1186/s12913-021-06512-2] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/34020635]
24. Ribé Buitrón, J.M.; Pérez Téstor, C.; Muros Guijarro, R.; Nofuentes García, C. Considerations about the interpretation of the Zarit scale in caregivers of patients with schizophrenia. Aten. Primaria; 2018; 50, pp. 443-444. [DOI: https://dx.doi.org/10.1016/j.aprim.2017.10.009] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/29551262]
25. Gort, A.M.; March, J.; Gómez, X.; de Miguel, M.; Mazarico, S.; Ballesté, J. Short Zarit scale in palliative care. Med. Clin.; 2005; 124, pp. 651-653. [DOI: https://dx.doi.org/10.1157/13074742] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/15882512]
26. Onwumere, J.; Learmonth, S.; Kuipers, E. Caring for a relative with delusional beliefs: A qualitative exploration. J. Psychiatr. Ment. Health Nurs. Abril; 2016; 23, pp. 145-155. [DOI: https://dx.doi.org/10.1111/jpm.12291]
27. Cho, Y.S.; Sohn, S.K. The elderly spouses’ experiences of providing care for their bedridden patient at home. Korean J. Adult Nurs.; 2017; 29, pp. 63-75. [DOI: https://dx.doi.org/10.7475/kjan.2017.29.1.63]
28. Abellán García, A.; Aceituno Nieto, P.; Pérez Díaz, J.; Ramiro Fariñas, D.; Ayala García, A.; Pujol Rodríguez, R. Un perfil de las personas mayores en España, 2019. Indicadores estadísticos básicos. Madrid: Informes Envejecimiento en Red no 22; 2019. Consultado; 2021; 10, pp. 1-38.
29. Moral, J.; González, M.T.; Landero, R. Estrés percibido, ira y burnout en amas de casa mexicanas. Rev. Iberoam. Psicol. Y Salud; 2011; 2, pp. 123-143.
30. Monin, J.K.; Levy, B.; Doyle, M.; Schulz, R.; Kershaw, T. The impact of both spousal caregivers’ and care recipients’ health on relationship satisfaction in the Caregiver Health Effects Study. J. Health Psychol.; 2019; 24, pp. 1744-1755. [DOI: https://dx.doi.org/10.1177/1359105317699682]
31. Schaffler-Schaden, D.; Krutter, S.; Seymer, A.; Eßl-Maurer, R.; Flamm, M.; Osterbrink, J. Caring for a relative with dementia: Determinants and gender differences of caregiver burden in the rural setting. Brain Sci.; 2021; 11, 1511. [DOI: https://dx.doi.org/10.3390/brainsci11111511]
32. Lang, A.; Macdonald, M.; Storch, J.; Elliott, K.; Stevenson, L.; Lacroix, H.; Donaldson, S.; Corsini-Munt, S.; Francis, F.; Curry, C.G. Home care safety perspectives from clients, family members, caregivers and paid providers. Healthc. Q.; 2009; 12, pp. 97-101. [DOI: https://dx.doi.org/10.12927/hcq.2009.20720] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/19667785]
33. Kindt, S.; Vansteenkiste, M.; Loeys, T.; Cano, A.; Lauwerier, E.; Verhofstadt, L.L.; Goubert, L. When is helping your partner with chronic pain a burden? The relation between helping motivation and personal and relational functioning. Pain Med.; 2015; 16, pp. 1732-1744. [DOI: https://dx.doi.org/10.1111/pme.12766]
34. Revenson, T.; Griva, K.; Luszczynska, A.; Morrison, V.; Panagopoulou, E.; Vilchinsky, N.; Hagedoorn, M. Caregiving in the Illness Context; Springer: Berlin/Heidelberg, Germany, 2016.
35. Gil-Hernández, E.; Ballester, P.; Guilabert, M.; Sánchez-García, A.; García-Torres, D.; Astier-Peña, M.P.; de Castro, M.T.G.-V.; Cobos-Vargas, Á.; Pérez-Pérez, P.; Carrillo, I.
36. Higginson, I.J.; Gao, W.; Jackson, D.; Murray, J.; Harding, R. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. J. Clin. Epidemiol.; 2010; 63, pp. 535-542. [DOI: https://dx.doi.org/10.1016/j.jclinepi.2009.06.014] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/19836205]
37. Corcoran, M.A. Gender differences in dementia management plans of spousal caregivers: Implications for occupational therapy. Am. J. Occup. Ther.; 1992; 46, pp. 1006-1012. [DOI: https://dx.doi.org/10.5014/ajot.46.11.1006] [PubMed: https://www.ncbi.nlm.nih.gov/pubmed/1463072]
38. Bush, E.C. Gender Differences in Specific Caregiver Burdens; University of Utah College of Nursing: Salt Lake City, UT, USA, 1997.
You have requested "on-the-fly" machine translation of selected content from our databases. This functionality is provided solely for your convenience and is in no way intended to replace human translation. Show full disclaimer
Neither ProQuest nor its licensors make any representations or warranties with respect to the translations. The translations are automatically generated "AS IS" and "AS AVAILABLE" and are not retained in our systems. PROQUEST AND ITS LICENSORS SPECIFICALLY DISCLAIM ANY AND ALL EXPRESS OR IMPLIED WARRANTIES, INCLUDING WITHOUT LIMITATION, ANY WARRANTIES FOR AVAILABILITY, ACCURACY, TIMELINESS, COMPLETENESS, NON-INFRINGMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE. Your use of the translations is subject to all use restrictions contained in your Electronic Products License Agreement and by using the translation functionality you agree to forgo any and all claims against ProQuest or its licensors for your use of the translation functionality and any output derived there from. Hide full disclaimer
© 2025 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.
Abstract
You have requested "on-the-fly" machine translation of selected content from our databases. This functionality is provided solely for your convenience and is in no way intended to replace human translation. Show full disclaimer
Neither ProQuest nor its licensors make any representations or warranties with respect to the translations. The translations are automatically generated "AS IS" and "AS AVAILABLE" and are not retained in our systems. PROQUEST AND ITS LICENSORS SPECIFICALLY DISCLAIM ANY AND ALL EXPRESS OR IMPLIED WARRANTIES, INCLUDING WITHOUT LIMITATION, ANY WARRANTIES FOR AVAILABILITY, ACCURACY, TIMELINESS, COMPLETENESS, NON-INFRINGMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE. Your use of the translations is subject to all use restrictions contained in your Electronic Products License Agreement and by using the translation functionality you agree to forgo any and all claims against ProQuest or its licensors for your use of the translation functionality and any output derived there from. Hide full disclaimer
Details





1 Faculty of Pharmacy and Nutrition, Department of Clinical Pharmacology, Universidad Católica de San Antonio de Murcia (UCAM), 30107 Murcia, Spain; [email protected], ATENEA Research Team, Foundation for the Promotion of Health and Biomedical Research of the Valencian Region (FISABIO), 03013 Alacant, Spain; [email protected] (C.P.-E.); [email protected] (E.G.-H.)
2 ATENEA Research Team, Foundation for the Promotion of Health and Biomedical Research of the Valencian Region (FISABIO), 03013 Alacant, Spain; [email protected] (C.P.-E.); [email protected] (E.G.-H.)
3 Health Psychology Department, Universidad Miguel Hernández, 03202 Elche, Spain; [email protected] (A.S.-G.); [email protected] (M.G.)
4 ATENEA Research Team, Foundation for the Promotion of Health and Biomedical Research of the Valencian Region (FISABIO), 03013 Alacant, Spain; [email protected] (C.P.-E.); [email protected] (E.G.-H.), Health Psychology Department, Universidad Miguel Hernández, 03202 Elche, Spain; [email protected] (A.S.-G.); [email protected] (M.G.)