Full text

Turn on search term navigation

© 2025 White et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.

Abstract

Background

Thanks to antiretroviral therapy, people living with HIV have an increased life expectancy, but face multimorbidity challenges while ageing. This study aimed to evaluate the monitoring capabilities of Spain’s subnational and national health information systems in addressing the multimorbidity needs of people with HIV (PHIV).

Methods

Employing 7 semi-structured focus groups discussions of 20 total participants through purposive sampling of relevant professional profiles recruited by the Spanish Interdisciplinary AIDS Society (SEISIDA), we thematically analysed the discussions using two theoretical frameworks: the World Health Organization health systems building blocks and the DeLone and McLean Information Systems Success Model. Content was validated via participant follow-up and triangulation with publicly available data.

Results

Participant feedback revealed ongoing challenges and capacities within the Spanish health information system for collecting, reporting, and using multimorbidity information among PHIV, including gaps in systematic monitoring of comorbidities, including mental health, technical and interoperability challenges in health data systems, and the need for improved data collection and coordination strategies.

Conclusion

Our findings underscore the importance of a comprehensive approach to health monitoring for chronic care management and the critical role of data standardization and systematization towards improved patient care and public health goal-setting.

Details

Title
Challenges and opportunities in monitoring the long-term well-being of people with HIV in Spain
Author
White, Trenton M  VIAFID ORCID Logo  ; Fuster-RuizdeApodaca, María José; Iniesta, Carlos; Prats-Silvestre, Carlos; Díaz, Asunción  VIAFID ORCID Logo  ; Barberá, Aurora  VIAFID ORCID Logo  ; Lazarus, Jeffrey V  VIAFID ORCID Logo 
First page
e0325355
Section
Research Article
Publication year
2025
Publication date
Aug 2025
Publisher
Public Library of Science
e-ISSN
19326203
Source type
Scholarly Journal
Language of publication
English
ProQuest document ID
3239700461
Copyright
© 2025 White et al. This is an open access article distributed under the terms of the Creative Commons Attribution License: http://creativecommons.org/licenses/by/4.0/ (the “License”), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.